"Even if I have PBC, I very much enjoy life... - PBC Foundation

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"Even if I have PBC, I very much enjoy life because....."

Cristina_Romania profile image
7 Replies

Ihave talked recently to a couple of quite depressed, scared, sad PBC people, but also to a few very active and positive ones. I try to take positive mental attitude arguments from the latter to the ones who are in a low mood.

What makes you ? Maybe it could be useful for others :). Can be anything that you manage to do despite your PBC (that sometimes gets in the way, perhaps).

Going out, gardening, playing with (grand)children, going to the gym....

Thanks for sharing :).

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Cristina_Romania profile image
Cristina_Romania
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7 Replies
Cristina_Romania profile image
Cristina_Romania

P.S. It's not only about taking your thoughts away from the unignorable problems triggered by PBC, it's also about fueling your mind to help your body fel better.

JerseyChris profile image
JerseyChris

Hi Although I am medically retired I lead a great life. I have total wipe out days where I am unable to function and these do make me feel very down as I feel the PBC is controlling me,but on the other days I go to the gym, walk, cycle, party even if I have to push myself I soon feel better because at least I have achieved something. I refuse to let the PBC take over my life completely and am really happy.

Jeannie31 profile image
Jeannie31

I agree with JerseyChris that we can 't let PBC control our lives. I do Pilates twice a week, walk a lot and travel as much as time and money allows. I do get tired but I've learned to pace myself I find my best way of dealing with it is to take Urso as prescribed but then try to forget about it and get on with living. Easier said than done I'm sure for a lot of people who have lots of symptoms but I'm sure a positive outlook helps.

spoul profile image
spoul

I too am medically retired nearly 2 years.My life is different to my well friends but still good. My mornings are very productive, then I go to bed every afternoon so I can function in the evening. Its surprising how you adapt its probably more difficult for family and friends to accept

Take care everyone

catherine69 profile image
catherine69

What a breath of fresh air reading the above posts, I do understand peoples fears and at the beginning I was the same (usually frightening myself reading stuff on the internet) now I just get on with it, if its a day Im sore I know to rest but I sure do love taking advantage of the good days :)

SLWB profile image
SLWB

For sure getting outdoors with some activity will always lighten your spirits. Plus it is healthy, light exercise with give you more energy as well. Movie night with the girls, book club, gardening, lunch dates...just a few thing I do as much as possible. I think that it is normal to be up and down with your moods, especially if your not just dealing with PBC, as most of us deal with other illnesses as well. My down time don't last too long (2-3 days max). I don't like to be around people when I get down, but being alone is not the best choice either, so I will go for long walks or hang out at the mall all day, just browsing. However, if you are the type who needs to be around people, then you should have a t least one good friend to lean on. I don't like to lean on my husband or kids, so I will often go for coffee with my girlfriend, if I feel the need to talk. A lot of people turn to their spouse or kids. So you just have to do what is best for you. :)

EAJSWW profile image
EAJSWW

Like Chris said, although i cant work, I do have a lovely life... I do waht i can, when i can... if i can't do much up and about, i find something useful to do whilst resting.

It's very easy to get dragged down into a spiral of negativity and it's so important to find something that works to relieve thigns when despondancy sets in.

I go dancing.... I dont dance like many do.. ie every dance... more like one on the dance floor and four off and i am not as quick on my feet as many but even if I can't dance at all, I use the time to socialise, to chat, and to laugh!! laughter is the best medicine of all!

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