anemia: anemia and pbc? - PBC Foundation

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Gran54 profile image
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anemia and pbc?

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Gran54 profile image
Gran54
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Gabe61 profile image
Gabe61

Hi. Do you have both anemia and PBC? That’s really how my barrage of specialists and tests started. I found a new GP and he did all new bloodwork as I was getting sicker and more exhausted daily. I was sent to emergency when he received my results because my anemia was so bad they had to decide on the spot whether they would do a blood transfusion or an iron intervenus. I was terrified. They did an intervenus and I was sent to the hospital 2 days later for a full day of tests. The dr there then referred me to at least 1/2 dozen specialists for more tests. When I finally saw the liver specialist about a month ago he diagnosed me with PBC. I’m now on Urso and still taking 300 mg of iron a day as my iron levels are still very low. All this time, probably about 2 years, I beat myself up because I (and others) thought I was just lazy. I’m praying that the Urso will give some of “me” back.

butterflyEi profile image
butterflyEi

I have pernicious anaemia which is another auto immune disease to go with PBC and one other.

There are several types of anaemia, do you know which you might have?

Gabe61 profile image
Gabe61 in reply tobutterflyEi

No I don’t. No one told me that there are different types. I’m learning fast that I have to ASK questions and insist on answers. I hope you are doing well. ❤️

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