Hospital appointment

Hello, was wondering if anyone has Milton Keynes as their hospital, they forgot me when my pain started and I had to get in contact with them and they rushed me in because of my high level results and I had my gall bladder removed but was rushed back in within weeks and they diagnosed pbc, started urso in July and was meant to be on it for 3 months to see how I was getting on with it and they were going to send me another appointment but looks like the same problem as I haven't heard from them since, has anyone else had this from them and have you found a better hospital? Thank you ;-)

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  • I moved from Milton Keynes last year and have changed hospitals but I had 16 years of excellent care there. But if I didn't get an appointment sent for when I was due I would telephone the booking line and get it organised. That always worked. I was with Dr Lanzon Miller but he is retiring but he may be still there 1 day a week. Ask for an appointment with him, he is very good and I was sorry to leave him. Hope this helps.

  • Thank you it helps lots, I just seem to keep chasing them.

  • Hi, I have been under Milton Keynes gastro for 6 years now. And I have had to chase them twice in the last couple of years. The excuse was that my records had been filed wrong. I have now asked for a referral to Birmingham heptologist and have an appointment in march. There is a support group for PBC in Towcester run by 2 lovely ladies called Margaret and Mary.

    If you contact the PBC foundation they will give you there contact numbers.

    We usually meet a couple of times a year. You would be most welcome to come to the next meeting.

  • Thank you very much, would be lovely to meet up with people who know what we are going through as to everyone else it's an invisible illness ;-)

  • Hi, just thought I would let you know that the next Pbc support meeting in Towcester is going to be 1st April. If you would like to attend please email Margaret on maggiejim2@gmail.com and she will let you know the details.

    Hope to see you there.

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