Sorry for not being around much. My son and I had our Disneyland Vacation (it was beyond amazing) and since we've been back I've just been focusing on getting back into work mode and trying to keep up with everything around the house (with renos).
First - our trip...it was amazing - we had so much fun and did everything! We rode all the rides in California Park and Disneyland Park (except for a few of the rides for little ones) - and walked (and stood still) A LOT! Nothing hurt - no symptoms, no itching, no joint paint in my hands - nothing - I felt great (except my feet and ankles from all the walking/standing). It was awesome! (EPIC is my son's word for it) We sat at breakfast with Mickey and his friends made their rounds to see all the kids at breakfast and Kalan looked at me with a stunned look on his face and I said "hun, what's wrong are you okay?" and he said "Mom, am I really seeing all this?" my heart melted!
Second - I'm sorry for not keeping up with what's going on with everyone - I will do my best to try to catch up. This vacation was a great way for me to remember to live and move on. I'm lucky enough that my symptoms don't get too overwhelming (unless I let myself get stressed out too much). I am more positive now, and as long as I take my meds and take care of me - I'm doing all I can.
Partly the reason why I didn't come back on right after my vacation is I needed a break to let go I think. I've let go now, I'm not sad anymore - at least not now. I'm learning to be kinder to myself in general and to show myself more self compassion - in all aspects of my life and that's where my focus is now. It's not on the fact I have PBC - it's on me - where it should have been all along. My focus has always been everyone else - and of course my son first. But I have to take care of (emotionally too) in order to take care of my son - so I'm focusing on taking care of me as well right now - and to do that I needed to take a break from the site and from the world of PBC. I'm glad though, to be back and will try to catch myself up.