Hi all , I'm newly diagnosed with pbc and wondering does anyone get pimple looking lumps ? Mainly chest and tops of arms?could it be diet??

[mandilou]

[Brummi]

Hi mandible, As we all know the body works in different ways. The way I found out I had PBC was through a blood test. I have had a few spots and got told they were blood related. It's always a good thing to check with your consultant about diets . I eat as normal as I can now but due due to my anti rejection tablets there are certain foods I have to avoid. Good luck and take care..

[mandilou in reply to Brummi]

Thanks brummi

I see specialist on Wednesday to confirm what stage im at which appears to be st2.so fingers crossed hel help me.

[Hidden]

Yes I have got a few on the top of my buttocks but that's all really. Not sure if we are of the one and same here but I think mine are due to small fatty desposits that you can acquire in various places.

I think that is what mine is but despite me catching them when I itch at night, they do seem to be vanishing but due to catching them often I am going to be left with a few scars now.

[cavi]

Hi Mandilou Are your spots itchy a different kind of itch we get with PBC and look like a bite if so yes I get them in different parts of my body.

[mandilou in reply to cavi]

Hi cavi yes that's them!! Wonder how u can stip byhen, my skinned so marked with scabs and scars I go nowhere unless covered up

[gaby1011]

Hi mandible. My arms are covered in those red bumps and they hurt and itch like hell. I have scabs all over my arms as well as some permanent scars. I was told that liver problems cause skin issues - it's all related to the blood. I'm always covered up when I go out because my arms look so disgusting.The only thing that has slightly helped is hydroxyzine tabs,50 mg. which I take 4X a day. Sometimes the Sarna lotion which has menthol and camphor in it helps to cool the burning feeling down. Mine is worse at night. It can be so bad that I can't sleep which adds to the fatigue the following day. My Dr put me on cholestramine which combined with urso is suppose to help with the PBC itching. It didn't.

[Hidden in reply to gaby1011]

Hello gaby1011. My itching has caused small scars on my legs from my just below my knees. A few inches up from my ankles there is really no sign of any. Despite my arms itching on/off at times I don't seem to have any signs of anything there as yet. Doubt I'd wear shorts these days due to how awful my calves appear at present.

Apparently PBC and anything liver-related can cause skin problems. I know when one developed a bruise from a bump, that slowly started to fade and would go yellow before vanishing. The yellow was bile. Since diagnose 2010 I have noticed that if I rarely bump myself the bruise fades but I never seem to see or have very little yellowing these days although the bruise does seem to go fairly quickly. I think this is more than likely due to the fact that we are now with a compromised bile flow as PBC is and thought we are taking the urso as a component of bile, being synthetic it just isn't the same as our own.

I have noticed in the past year that with itching, my skin has taken on a bronzey tone behind my calves.