Is there any kind of bread that is better f... - PBC Foundation
Is there any kind of bread that is better for us then others? I know we should eat fruit and vegetables, low salt, nothing fried etc!
Gluten grains - wheat, rye, barley, oats - many people are allergic to them and if so,they trigger autoimmune disease, because the proteins in them get absorbed into the body through damaged intestinal mucosa. I'd stay away from them.
Unless you have particular symptoms there is nothing you should do differently in your diet. I have attended a dietician and other than eating more meat for iron and more sunshine for lack of Vit D there was nothing they suggested. A balanced diet was what they recommended, watch cholesterol etc. So far my blood tests continue to support this. I wouldn't take anything out of your diet unless it is suggested to you following specific tests.
Personally I would stay away from anything processed. Other than the odd occasions I make everything myself from scratch. No sweetners no chemical food...read the ingredients and if you don't know how to make it don't eat it. No alcohol and I tend to stick to low carb.
I was also told to carry on eating and drinking as I would normally. Not to cut out anything as our condition has not been caused by food or drink. Keep everything balanced and nothing to excess.
Hi there, I live in the U.S.A and we have the best doctors in the world and listening to tell you tell us what your doctor said furiates me. Drinking will cause scar tissue to your liver which you don't want. You have to stop drinking completely. And as far as eating, you have to be very careful in what goes into your mouth because if you don't you could possibly end up with a fatty liver disease as well. And also remember do not add salt to your food. It is true our disease is not caused by food or drink, so they say but by eating right and not drinking we can slow the process down.
Sorry but my consultant told me to carry as normal as well...... Why is having an odd glass of wine going to cause damage, when there is none there at the moment. Fine if I drink a whole bottle or 2 but a glass when I feel like it has made no difference to my liver so far. It really depends on the condition of your liver, if there is a lot of damage and scarring already then yes drinking or eating a poor diet will not help, otherwise I feel everything in moderation, even salt.
Keep healthy
Lou
Seems we all been told different things, I was told never to drink again so have stopped, as for my diet I generally eat well, but am too cutting down on ready meals and processed food, Im making lots of things with Garlic and tumeric which are said to be good for the liver and im having wholemeal bread and rice etc rather than white, Junolee can you tell me anything more about artifical sweetners?
I have been told by the dietician that I should stay low fat, low salt and a balanced diet with as little processed food as possible. This was the advice in view of my problems with ongoing nausea and fat intolerance. The change itself wasn't that much of a problem for me as this is what I have been eating most of my life. However, I found that I feel even better with a mainly Vegetarian diet.
Smart lady
Hello 2006.
Well I am the same way of thinking as Junolee. I've not seen a dietician but I did ask the consultant in my early days of PBC (diagnosed Dec 2010) if there was anything I shold avoid and he said to just eat whatever I wanted. Alcohol wasn't mentioned as I had already informed him on my first consultation just prior to PBC diagnosis that I only drank at the odd family occasion, Christmas Eve with family members and I'd not had any alcohol since my first abnormal LFTs in March 2010. I haven't had any alcohol since and it is of no significance to me, I just do not bother.
Some say that eating gluten-free is of gerat benefit but unless you have a specific problem there is no need in my opinion but I'd say limit bread unless you know it is without additives (I did find some bread sticks that are part-baked which had no additives at all in them). I also watch the fat content of my diet, did prior to being informed I had PBC. Salt I have never added to any baking or cooking, think there can be enough in certain foods not to warrant it and I do not add any to meals either.
At the end of the day I reckon eating foods that have no additives in them or as little as possible (you can't always know) and also eat as little as you can of heavily processed foods. I tend to cook my own meals so know what is in them.
My son did go through a patch where a hospital consultant after using endoscope reckoned he had a temporary gluten-intolerance and he reckoned to wheat. Thought to have been caused by too many courses of antibiotics in a short space of time. I started cooking foods (rice for instance and corn pasta) that were lacking wheat gluten and over time my son re-introduced a bit of bread or a breakfast cereal and he has been fine. I do however find that there are certain gluten-free products myself that I have enjoyed sampling (using gluten-free self-raising flour for eg) and am continuing to use. Rice has to be the best food that is very digestible in my opinion as back in the 1980s it was deemed a good basic food for starting to wean a baby with.
I have never been partial to fizzy drinks and do not entertain the cola drinks at all, find too many chemics in them and also I do not eat things with artificial sweetners in them as I deem them a baddy.
At the end of the day I think quality far outweighs quantity and by eating well with PBC you should feel some difference yourself. I have only been lacking in iron since PBC diagnosis. I was on the normal lowest level line for ferritin back in Nov and had 2 months of iron but at re-test it was fine. I've never been a big red meat eater myself, prefer chicken or fish. I bought a couple of cast iron fry pans a couple yrs ago as they leak iron into foods when used. I cook tomatoes in them mainly (the acidity of the tomatoes apparently makes them good for taking in iron when using a cast iron pan).
I've felt pretty good in the last few years and my bloods though not normal, they come down and then rise a bit at repeats but I've noticed myself that they appear to be a bit cyclical depending on the time of yr. They are of no real concern as yet and I think myself I am doing pretty well.
Thank you for all your advice. I am cooking all my meals from scratch when I can. I am using honey instead of sugar and I have cut out the use of salt, no more soda as I am drinking a lot of water and tea.
I have gone off aspartame (diet drinks) and I don't drink "fizzy" drinks either as it gives me too much gas. I think anything that lessens the load the liver has to carry is a good thing. If you have gluten intolerance, by all means don't eat it. I avoid things that cause me to feel bad. Fat intolerence is a big one. I have bad acid reflux and I can't eat things that are acidity, hot or too greasy. I don't think it has anything to do with PBC, but I may be wrong. I've had issues with all this since I had my GB removed in 2004. As far as the US having the best doctors in the world, (I am in the US) That may be true in some respects, but where I'm from that isn't always the case. The way our health care system is going it isn't going to be that way for long. As far as I'm concerned, with some bad situations aside, the UK seems to have a better handle on this PBC thing. Of course I live in a more rural area with not as many people.
Hi I'm a newby. To both here and Pbc. Just started urso and due biopsy soon. Before seeing the specialist and being diagnosed officially I was having difficulty's Ie. Large meals sent me to sleep. Alcohol made me spend the next day on the settee. Etc. Etc. I have cut all but essential fats out of my diet. Cook from scratch eat smaller portions and lots of whole wheat, veg less sugar etc. I still have a little alcohol but no beer or red wine or spirits. Dry vermouth is OK. The change has been amazing and I can now actually do things.
