what to do.....: just been diagnosed... - Pernicious Anaemi...

Pernicious Anaemia Society

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what to do.....

frankie483 profile image
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just been diagnosed with a very low b12 and was told i needed loading up, but after the first injection i had a bad reaction on that day achy joints bad tummy nausea weird feeling....but the following day woke up feeling ok but after taking my regular beta blocker i became really poorly, chest pain nausea feeling shaky and very weird ended up at the docs having an ecg thankfully all ok and as the day went on i felt better but the following day after the atenanol tab i was back to square one i spoke to my doctor again who thinks it is a reaction to the both has anyone else heard of this as i am being told i have to reduce the dosage of atenanol for a couple of weeks and then try another injection i am really reluctant when my doctor admitted she didnt really know if this was right ...... please help as i am unsure what to do...

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frankie483
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lemurtail profile image
lemurtail

I recently replied to another thread here about reactions to B12 as I'd also had a very severe one, resulting in a seizure, persistent cramping and chest pain. I couldn't even walk properly. My GP said I was the 1st person to report such a reaction and has ceased all my B12 injections for now until he can find out what went wrong.

On the other thread (I wish I could find it), someone answered that such reactions are known to occur with potassium deficiciency, and posted a link. Having read it, I'm convinced that is what may be happening with us. Apparently in a person with severe B12 depletion, the B12 injection causes a sudden drop in potassium levels and that results in the frightening symptoms.

shakylove profile image
shakylove

i hav bin having same after my first injection wiv b12 but i was thinkin its just another flare up wiv my lupus but i am feeling better now but its awful when u feel like tht i end up crying coz i felt tht bad i was white in face nearly sick n pains everywhere n felt so tired

frankie483 profile image
frankie483

thank you all for your replies since putting on post i got severely worse which resulted in me in a great deal of pain and finding it very difficult to walk, bad diarrohea and also blood in my urine sample so my kidneys were also struggling.... and feeling very ill and scared as to what was happening to me .i saw my doctor on one of the worse days and said no more injections and was referring me to a specialist.....even now 5 days later i am still poorly...

but reading your replies have helped as dr made me feel a freak......

and when i see doctor again i will mention the potassium.......thank you all again

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