PA Doctor

[Mrl1234]

Hi all, I'm tired of trying to navigate this situation alone or with uninformed doctors. Is there a resource that lists doctors that know this stuff well and supports it? I am in the USA. Would be looking for someone close to the Midwest, but preferably in Michigan or near Chicago would be ideal. Thanks!

[wedgewood]

As the PAS is a U.K. society, with mainly U.K. members , I recommend that you write another message that indicates in the heading that you are in USA , near Michigan / Chicago , and need information. But I believe that the situation in USA is very similar to U.K. regarding B12 deficiency/ Pernicious Anaemia — dire! U.K members on this forum have to self -inject with vitamin B12 to keep well .

Best wishes .

[Sleepybunny]

Hi,

There is a PAS (Pernicious Anaemia Society) support group in Chicago area.

They have an online meeting on 3rd May. These can be useful places to swap info and experiences.

pernicious-anaemia-society....

PAS membership is separate to membership of this forum.

pernicious-anaemia-society....

Might also be worth searching forum posts with terms "US /USA/America" which hopefully will show threads written by other forum members in USA. Click on Posts tab, top left of screen, just above title of your post if you're on a computer.

PAS Personal Stories include some written by members in US.

pernicious-anaemia-society....

I think forum rules prevent people from recommending doctors on the open forum but as far as I know, there is nothing to stop people sending you a PM (private message).

[Mrl1234 in reply to Sleepybunny]

Thank you so much!

[Destiny79]

You will have to look for a rheumatologist. It is very difficult to find a knowledgeable source/person that treats actual symptoms. You are your best advocate, read, research, ask questions. Typically I've found doctors go by their own " guidance book" vs symptoms of patient. There's no one size fit all and this is the general issue.I hope you find the diamond of doctors to help you through this frustrating ordeal!!