Nothing is in a timely manner ,it’s all feeling like vicious circles
There really should be somewhere we can turn too
I’m really up for self injecting once my initial diagnosis, but this seems so sad that the people who should be listening really are not.
it seems like in the minds of all of those people who should be helping us …we all should still be eating raw liver (how ridiculous ) even if I ate the whole cow ( or any other animal come to that) my body still may not be absorbing nutrients and I maybe vegetarian , and obviously because everyone’s depressed we should all be taking antidepressant’s as we definitely need to add those into the mix (not) I’m definitely not saying they aren’t good for some but not me …
Visiting our gp …the above feels to me there goal definitely for women of a certain age or anyone come to that who will put up and shut up 🤐 there jobs done
Everyone should be helped and be able to enjoy simple qualities of life
Sorry about my rant and if it’s all over the place, I’m mad today and I’m sure hundreds thousands before me have felt exactly the same it’s so sad
I sit here shaking my head thinking I need to calm down chill …put together what sense and anger I have got into writing to those who may help me …but they probably will not …but I must stay optimistic
Written by
Dislancas69
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I felt angry for many years .... suffered both physically and mentally needlessly. I tried to use the anger I felt to help others avoid my experiences. These days I think it's more wistfulness for what my life might have been like.
PAS have personal stories on their website which you might relate to.
I left these on one of your other threads but leaving them here in case they help you or someone else reading this thread. Some links may have details that could be upsetting to read.
Threads with links to help those in UK struggling to get diagnosis/adequate treatment of B12 deficiency or wanting to complain.
We are so lucky that we have PAS .What ever life would be like without it ,I cannot imagine . It’s fine for you to have a rant Dislancas69. We all understand you . It is so wrong that we have such a battle , because of ignorance. At least we can help eachother . Yes anger sometimes overwhelms me too , because my life , and the lives of many others has been negatively affected by the dreadful ignorance of most of the medical profession regarding diagnosis and treatment of B12d /P.A. . All for the want of a cheap vitamin . Truly unbelievable. Best wishes to you .
Search for "Wolffenbuttel B12 deficiency" to find other articles he's written, including one for Mayo Clinic in US and one for BMJ (British Medical Journal).
His most recent article was a review of B12 treatment/ diagnosis which might be worth passing to GP.
Search for "Wolffenbuttel B12 deficiency overview 2024" to find it.
In my personal opinion he's one of the few doctors who understands B12 deficiency.
4) B12d.org online talks may be of interest to GP.
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