😩 STRESS

[Nackapan]

I'm due to go to the doctors surgery tomorrow for my IM B12 injectionI looked at my NHS app .

A named person has cancelled my repeat prescription of b12 ampoules

I've just found out the named person is a receptionist at my new surgery .

( old one closed )

It was cancelled on starting there then reinstated by a pharmacist .

I also have not had a reply to a letter I sent a month ago.

I'd requested my medical notes as alot of wrong entries.

34 years were missing.

I've asked for an explanation ??

So the nurse may over run tomorrow

morning! as the receptionist I've spoken to didn't know why my b12 stopped.

Fortunately picked up last prescription in August !

Never ending

[Thrones12]

so sorry Nackapan x

[Jillymo]

Sorry to hear of your delema it is all stress you could do without.

I am confident that you have enough knowledge under your belt to be able to tackle this situation and sort it out. 🤞

Good luck. 🍀

[Nackapan in reply to Jillymo]

Thanks.New surgery!

Not met any of the doctors .

Not sure anyone has !!

A big Influx from my old surgery closing in April.

[Jason_h123]

very sorry to hear this and hoping you get everything sorted today with as little stress as possible.

Hopefully they will listen to your indisputable knowledge and things will be resolved.

It really is a never ending battle, best of luck!!

[Nackapan in reply to Jason_h123]

Yes it's actually becoming 'work'The stress is having to deal with a new GP.

Up to them again to'santion ' my prescription and regime of not!

Wasn't my choice having to deal with a new surgery.

Old one closed .

NHS app wiped clean.

The repeat prescription of B12 was only reinstated in May 2023.

Got my prescription in August .

Then without even informing me removed it ???

Admin/ receptionist I now know did it at the surgeries pharmacist request. The one that put it back on in May .

Thank you for reply .

Would they do this to someone on insulin

NO

[Cherylclaire Forum Support in reply to Nackapan]

Is this a communication failure ?

Can a pharmacist get a prescription stopped on request ? I would have thought that, should a pharmacist have any concerns regarding quantity, that they would have to at least discuss this with the GP that requested that frequency and signed the prescription (?)

You have done this, time and time over, for you, for your mum, for your daughter.

It is turning into something of a cyclical trial where you are forced to justify your need for B12 - mainly, I suspect, because the appropriate tests were not given to you at the appropriate time. You are stuck in what Martyn Hooper calls "purgatory": without a firm diagnosis, without explanation for your B12 deficiency.

Stress (especially unnecessary stress over which you have no control) must be the worst culprit for depletion of B12. B12 is the only treatment you have been given to control all of your symptoms, without offering any further investigations.

If they choose to remove the treatment, what are they going to do about your worsening symptoms : ignore them completely ?

I'm wishing really hard that you get a GP who sees and hears you, who is not resistant to learning and prides themselves on their investigative abilities.

Too much to ask ? No. Time someone took the weight off your shoulders now.

[witchcat43 in reply to Cherylclaire]

It was a pharmacist who removed my B12…had to write a stinker of a letter to the Practice Manager threatening hell and damnation…he rang me up with an ‘almost’ apology, said he’d spoken to a Haematologist who said I should be allowed 1 every 12 weeks not the 8 weekly I was on, I took that as a win then changed surgeries.

[Nackapan in reply to Cherylclaire]

Seemingly it was the 'in house' pharmacists admin assistant that cancelled the repeat prescription as not 3 monthly!

You wouldn't think this could happen.

It's up to me now

1. To find out ( not consulted of indeed informed)

2. To sort

3. See a G.p

4. Nurse will not book further b12 injections

Finally managed to book a G.p appointment 4 miles away .

My surgery local 3/4 mile away.

Its in this new group set up.

No local appointments available.

No idea where this surgery is.

No idea how to cancel either as new online booking doest state .

No idea who I'm seeing.

You'd think if would state Gp name ?

Talk about using up precious energy.

It's all a mess I'm afraid .

These groups havr so many gps but no choice of who you see so no hope of continuity .

Too far away when 3 more surgeries within 1 mile.

Why have a named local surgery .

Nothing making sense .

[Wheat]

hello, sorry you have the stress of this again. Hope you get it sorted out asap! x

[Nackapan in reply to Wheat]

Thank you.Above reply explains .

It's happened so many times but I can't help the stress building .

Keeping calm .

Explaining over and over

I have plenty for now .

Wonder if the nurse refuses my IM b12 booked for this morning ??

[Polo22 in reply to Nackapan]

back on here ASAP to let us know, hope she doesn't, leave details so we can bail you out or set up a retrieval team 😂👍

I know this isn't funny but our heads would implode sometimes, hope it works out without the need for Police

[pitney]

sorry you are going through all this stress yet again hope its sorted quickly😱

[Jason_h123]

keep the faith !! I know it’s an uphill battle but hopefully you will find somebody that listens AND took notice of the 5 minute B12 lecture in training !!

[Sleepybunny in reply to Jason_h123]

This video by the person who started Club B12 says that nutrition and B12 is no longer on the curriculum. There is a tragic story discussed in the video.

club-12.org/meeting-catch-up

[Wheat in reply to Sleepybunny]

Thank you for this video. Awfully sad personal story. Apalling that nutrition and B12 has not been in medical students training for past 10 years. Heaven help us all!

[KBird01]

Aw so sorry to hear you're stuck in yet another round of this. Hoping you get a resolution v soon. 🤗

[dollcat]

That's awful. I hope it gets sorted 🙏 asap. GP surgeries are so messed up since the start of Covid.

[witchcat43]

Oh for heavens sake…I’d this ever going to stop for you Nackapan 😢

[Nackapan]

Thank-you for all replies.Back from the surgery .

Have all communicated with each other on this.

Receptionist. Another shot off . Nurse. All said exactly same .

Was it paranoia.

No.

Apparently no one has more than 3 monthly b12 injections

No one has a prescription to inject themselves at home.

The nurse b12 deficient herself on a precious appointment told me she has 8 weekly???

The nurse very different wth me .

I sat quietly and said was i getting the b12 injection?

On this occasion ( like s favour!!)

Yes.

No more can be booked .

I must see s G.p ASAP.

I asked the receptionist yo fill out thd appointment request.

Stating vision blurry which it was. ( furious inside ) shaking.

Totally quiet choosing words .

As j gave s reason she did it.

Asked what to write ✍

B12 prescription removed.

Without consultation.

You then receive a text with a link.

Thd text said ;

It appears you have had z b12 injection today.

A consultation needed ax to see why such a frequency needed.

Followed the link .

It said.

No appointments

Link expires in 3 days.

If unsuccessful contact the surgery .

We all know that's almost impossible.

I've only just left.

I'm back Friday as nurse woukd only do b12 not blood test .

Another appointment needed.

I utterly despair at the current system.

Too many receptionists and admins doing things way above their grade .

My prescription was cancelled by thd In house pharmacy admin worker.

Non clinical.

I had s review with thd pharmacist when nes to the surgery.

Shd put the repeat b12 on my notes.

I've collected one lot thankfully .

If no appointments by Friday i will brace myself for another sit in as z vicious circle going nowhere.

When / if I get to see s Gp dread having to go through it all.

Then at the mercy of whoever I get yet again.

We are being persecuted .

Just wanting the treatment we need.

Will update.

Weary ,weary

[Wheat in reply to Nackapan]

Oh gosh, Nackapan, its beyond belief you must be reeling. Its madness. I send all my best wishes for a good outcome. 🍀🌷

[Sleepybunny in reply to Nackapan]

We're all rooting for you Nackapan.

I wondered if Tracey Whitty of B12 Info.com (formerly B12 Deficiency Info) would be interested in blogging about your story. It's ridiculous that you're going through this again and again.

b12info.com/

In case anyone reading this thread is having similar issues to Nackapan....

This thread about Patient Safety has some links that might be useful to those having difficulties getting adequate treatment.

healthunlocked.com/pasoc/po...

More useful info in pinned post "Various B12D/PA resources".

Pinned posts are on right hand side of screen if on computer.

[Nackapan in reply to Sleepybunny]

Got an appointment to see an unknown G.p tomorrow .To try and get my prescription back.

[Polo22 in reply to Nackapan]

Nackapan did you get any satisfaction with this random GP, or is it just me being goldfish like again

[Nackapan in reply to Polo22]

Yes. A locum that listened. Reinstated my b12 prescription.

Did say coujd happen again by a pharmacy admin.!!

Computer highlights not 'normal' frequency.

Also 99.9% IM at the surgery .

I collect ampoules and self inject sc.

IM at surgery every 6 weeks.

Thanks for asking I thought I'd posted lol

[Polo22 in reply to Nackapan]

You might have 🤔 it's a bit like t😕 confused leading the perplexed around here🤫

[Polo22]

What is? The treatment guidelines/frequency or the admin being able to stop it as " not normal"

[Nackapan in reply to Polo22]

I'm sorry answer put on wrong thread 🫣

Deleted it lol

[Polo22 in reply to Nackapan]

see, too much to do too many people to NOT strangle, 🤫😂

[Nackapan in reply to Polo22]

2-3 monthly b12 injections as in guidelines deemed 'normal 'So my prescription stopped by pharmacy admin

[Polo22]

trying to sort out several things at same time , not good, doesn't aid understanding

[Polo22]

It's just ridiculous , I'm amazed there aren't more arrests at Gp surgeries