I was diagnosed early this year. I inject myself monthly, but my symptoms wereEye sight
Stuttering
Pins and niddles
At some point I couldn't walk my feet were extremely painful and my legs
Couldn't walk straight
Forgetfulness
Chest pains as well etc
So my problem started when I tell my physician about what I was expiriencing, this is after I was diagnosed and I hv started with shots. He said the only symptoms for PA are pins and niddles on my hands and feet I got so confused, because after the second dose of the injection the symptoms started reversing. And now I get random headaches every day and my whole body itches at night I can't even sleep. I'm seeing him tomorrow but I'm not sure if I should mention what I'm expiriencing now coz I know he will say it's not related to PA.
Pls help what were your symptoms because this is confusing. I take cyanocobalamin.
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Mandosin_76
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P.A. can cause all of the symptoms you mention . The trouble is that the medical profession is very ignorant about Pernicious Anaemia. , and not just in South Africa Try and get some books that our Chairman Martyn Hooper has written about P.A. ( Amazon )
Although your symptoms could have another origin, at a glance all of them are consistent with B12 deficiency and many here have experienced them or variations thereof.
You may have some but not others and more can appear when you start treatment.
Pins and needles are a common symptom but by far not the only one. It is absolutely false to say that pins and needles are the only symptom. There is almost no system in the body which cannot be affected by B12 deficiency as it is critical to correct red blood cell production, oxygen delivery to cells via hemoglobin, DNA synthesis and repair, protein synthesis, maintenance of the myelin sheath that protects nerves, cellular energy production, neurotransmitter synthesis... etc etc.
In severe and/or long-lived deficiency , its common for symptoms to worsen or new symptoms to appear once B12 deficiency treatment starts in a process known as early treatment decline. Headaches would be common, nausea, etc. I also had increased itching but you might want to look into possible allergy situations here in terms of any additives in the B12 injections etc as these can also cause itching. Also , as you say you are on Cyanocobalamin you may react better to a different form of B12, Hydroxocobalamin, if its possible to trial it instead. As nerves come back to life its typical to have increased sensation, sometimes increased painful sensations.
Thank u so much for the prompt response and u have helped me a great deal. I thought I was crazy cz even if I make a research myself I see some of the symptoms I have as people may differ, but he denies all that, I will consider changing a physician coz clearly, he does not know much about PA. Thanx again
Very true. Coz I did tell my doctor today that most ppl u are suffering from PA have the same symptoms as me, he just kept quite, he did not comment on that, so I was confused again. But as long as I inject monthly I'm OK. Whether he agrees with me or Not
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Pernicious Anemia with worsening neuropathy. I'm new here.
Gp stopped my b12 injection and Iv had pernicious anemia 11 years , is this allowed apparently due to new research says my gp
Newly diagnosed with PA help please
Newly diagnosed with pernicious anemia, still have unresolved symptoms
Recently diagnosed with PA
