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This link may be of interest to P.A. Members interested in the research of Pernicious Anaemia

wedgewood profile image
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stuff.health/s/HcJBKbKM

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wedgewood
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dollcat profile image
dollcat

Happy New Year 🎈 ☺Thank you very much for the information. I will participate in the surveys when I use the laptop. My phone 📱 screen isn't very big and isn't good for taking surveys. Stay safe and well 🙏

wedgewood profile image
wedgewood in reply to dollcat

The more P.A. is researched , the better . We need more publicity . The general public does not know what shockingly bad treatment we get . Also under or untreated P.A.results in huge cost to the NHS . Advanced cases of untreated P.A. result in serious bad health for many years ( Yes , it does take many years of terrible bad health and suffering before Perniciousness actually sees us off ! ) I have seen what happens to someone who I’m confident had untreated P.A. , my mother . Because I now know so much more about P.A.Havjng it myself and hearing others accounts . The cost to the NHS of treating her terrible physical and mental ill-health was enormous . All because of ignorance of a really cheap vitamin . It now maddens me to hear that the NHS is trying to fob so many sufferers off with oral tablets which are useless for many patients . But still many doctors persist.

I feel much better after that rant !

in reply to wedgewood

My news year resolution Not to rant.... lasted less than a few hours ! 😂

Like you convinced my mother and grandmother had the same but undiagnosed.

I can not put into words how I feel about the NHS

(they would probably edit my response) but the more I read about the Algorithm sleepybunny posted the less I want to KNOW!

I am glad you feel better after the rant... I feel totally hopeless.

Dont give up wedgewood, the NHS say BOC

(Buy of the counter) and your information how to purchase of the Counter is vital to us all.

To think germany was once our enemy now it's our lifesaver.

So thankyou from us all.

Sleepybunny profile image
Sleepybunny in reply to

"Like you convinced my mother and grandmother had the same but undiagnosed."

I suspect the same is true of both my mother and grandmother.

Wedgewood,A lexicon of information and help

👍

wedgewood profile image
wedgewood in reply to

Yes thank goodness for those German online pharmacies that keep us alive ! I’ll have to write to them and thank them Where would we be without them ? I dread to think!

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