Unilateral neurological symptoms

[Mrsmr]

Hi has anyone else experienced neurological symptoms on one side of their body only?.I am currently on 2monthly jabs my Gp doent seem to think the neurological symptoms are caused by vit b12 deficiency. She says the symptoms are usually bilateral? Appreciate any advice.thanks

[Gambit62 Administrator]

The symptoms generally are billateral because of the fact that they are caused by things not working at the cell level. I do get some unilateral problems - left foot - but that is because I already had neurological damage to the nerves before diagnosis due to an accident so it was a little weaker - otherwise everything does tend to be symmetric.Is your GP referring you to a specialist?

[Mrsmr in reply to Gambit62]

Thanks Gambit. We have discussed it. This has been going on a long time and I was tested a long time ago for MS. Brain scan showed small areas of demylenation but all other tests ok so he said probably CFS!! Now gp focused on unexplained hypertension.

[Gambit62 Administrator in reply to Mrsmr]

Nothing like using a label for a group of symptoms as a way of diagnosing a problem away :)Have you tried using any high dose supplementation to see if that works - best started just after an injection.

[Nackapan in reply to Mrsmr]

Probably caused by lack of s 'prper' diagnosis!

[Nackapan]

I still have the text disappearing from the right only. I've alsol had two brain mris .

Showed t2 flares and White lesions and some dymylation

All deemed 'okay ' for my age.

Will never know what it was like before b12 deficiency?? 'For my age '

All medics seem to underestimate the damage that b12 deficiency csn cause.

Also told CFS .

Thats a symptom not a cause !!

[deniseinmilden]

My acute nerve damage tends to be more one sided than both sides although I am affected all over.

My left shoulder, 2nd and 3rd toes on my right foot, left side of my tongue and various different fingers always show up the start of extra problems first and are what I use as my "warning signs" that I'm getting too short of supporting supplements.

In theory B12 deficiency is bilateral because it affects your whole body but there's no reason why some nerves shouldn't be more sensitive than others or why blood flow can't be slightly impaired to some parts.

I'm sure it would/could be in a "perfect person" who has not been affected by their environment but few of us are symmetrical in the first place and then if we are left or right handed and have odd accidents over the years we tend to become less symmetrical as we age.

[Mrsmr in reply to deniseinmilden]

Thanks everyone. It is reassuring that I am not a hypochondriac!!!!

[pitney]

Mine mostly down the right hand side

[B12life in reply to pitney]

Mine is all on the right side.

[Baggy8]

Mine were mainly on the right side of my body... This meant I went years of being dismissed and undiagnosed.

[eclilley]

Yes, I have had nerve pains and PN only in, or worse in, specific places.Worst this year was left temple/occipital/head, seemed to be trigeminal nerve.

Then very bad constant pain right shoulder/upper back and acute nerve pain down right arm, tingling/pins & needles/feeling reduced capability right hand & fingers.Also have tended to get PN in left ankle & toes noticeably but not really the right.

GP did not think anything could be B12 related, because they'd tested my level when they shouldn't have of course.

I am now self injecting and all these pains are c.70-80% better than they were in early Summer.

[Bonjourtristesse]

Yes I have one sided nerve damage on rhs. With sufficient b12 I have no symptoms. Without enough my little and ring finger and toes on outer foot are numb. My symptoms started around 300 and I ‘only’ got as low as 200. My doctor refused to treat me, I paid for private injections and eventually did it myself. Despite reporting back to doctor that injections had fixed the issue he still told me it was placebo.

I think mine is actually poor digestion which means b12 is not well absorbed.

[eclilley]

Also, I believe that it's not only nerve pain & PN that are "neurological symptons". Many of the other typical B12D symptoms are neurological too, e.g. cognitive issues, brain fog, feeling low, anxiety, frequent urination, migraines...

[Mrsmr in reply to eclilley]

I agree eclilley, I also get the frequent urination,brain fog and migraines which I believe are B12D related. I also have digestive issues which have been investigated but apart from gastritis everything is OK. Reading all the replies it does seem as if things are looked at in isolation and the significance of B12D not recognised.

Very grateful for the forum for sharing information and your support.

Let's hope for positive outcomes for us all. 🙏🙏

I

[Cattywampus]

Yes I had unilateral neurological symptoms. A strange sensation in my left big toe was my first symptom, it wasn’t too bad during the day but at night it got to the stage where I couldn’t bear to have the duvet resting on it. It took a long time but has eventually, more or less, disappeared only rearing it’s head again occasionally if I’m overdue an injection, which isn’t often as I self inject more frequently than the 2 monthly injections prescribed by the GP.

[Laura1961]

I had numbness down the right side of my face from my eyebrow, like i had had a dental anaesthetic injection. Also i kept tripping with my right foot. This all stopped once PA was diagnosed and i had all my jabs.

[aksundell]

Yes, mine has been mostly on the left, my dominant side

[still_elsewhere]

It’s always my left big toe, and never anything on the right — so yes, unilateral rather than bilateral here too!

[fifi63]

Top of my left foot and a patch on my left thigh, which can be both numb and extremely painful at the same time.

[saatchiB12Z]

I have a peripheral polineuropathy because of B12 deficiency with bilateral symptoms. Once a week i get very strong pain on right down leg for 1-2 hours and i can walk very slowly.

[Mrsmr in reply to saatchiB12Z]

Thank you for replying snatching B12z, it's interesting how we can all experience different symptoms. My GP laughed when I explained what my symptoms are and how they all started after an operation possibly due to anaesthetic. Think I've stopped being upset by the sometimes rigid medical approach and try to deal with it myself.Stay happy and well