I’ve been diagnosed with B12 deficiency for 15 months. I’ve developed heightened sensitivity to sounds light and smell much more for sounds.. Is this B12 related ?
Suffering from cognitive impairment. I used to study for 8 to 10 hrs a day and now I can barely read for 1 hour.
I have to start my PhD soon and I don’t know if I can ever do at this rate .
I feel so depressed. I’m injecting every 5 th day. Is there any hope? Will I ever get back to studying because that’s the only thing I enjoy doing.
Many thanks.
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peace1234
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I feel your pain. I’m struggling to focus on reading too. I’ve also suffered from misophonia (irritability at sounds/certain sounds) for a long time, although was only recently diagnosed with P.A. so either it’s not necessarily related, or I’ve had P.A. longer than I thought.
At the minute I’m struggling to stay focused at work (working from home) so I’m just trying to create solutions and workarounds to the issues I’m facing. Maybe you could try something similar? For instance I’ve just ordered a to do list book and a sectioned notebook so I can keep notes and actions more effectively, because I find that I forget to follow up on actions.
I'm still light sensitive . Have always had a good sense of smell but it did heighten and things would make me nauseous.
The sound sensitivity I only have when too fatigued.(always fatigued!) I couldnt tolerate putting a lid on a Tupperware. Opening a present. Foil paper. Any paper noise. A firework went off and I felt under attack. I aks8 feel under attack when I walked into a room that a light had been left on by mistake. My body told me way before I'd realised what had happened . I actually fell to the floor. All so odd.
That noise sensitivity has got alot better. Still happens though. A door can be shut without me sghiluddering now. I'm nearly 2 years in , I'm hoping the sensitivity to light will slowly improve too.
I can get round a food shop with a big brimmed hat and tinted glasses. And of course a mask better most times. At the start of getting out I had to 100% concentrate on not falling over under artificial lights. They also set off awful migraines then chronic tension headaches .Also less . Keep. going with your injections. Check with a blood test if anything else needs addressing. Vitamin d ,iron, ferritin, folate magnesium ect
My fear was if a sound would set of days of head pain. I still cant speak on the landline . I can have the radio on very low at times now. So the answer is yes you are not alone.
My daughter has decided not to do a phd as she cant study at present. Shes nearly finished her masters but shes got ill. She did that part time. Is There a possibility of doing it part time to reduce the workload . A phd and b12 deficient symptoms donr really go unless you have got the symptoms at bay .
Defer?? I think it may delay your healing if you push too hard. It's awful if you set yourself up to fail when too poorly .
I'm really sorry but I have to leave for work in a minute but ultra sensitivity sounds a lot like magnesium deficiency to me.
For more information, please would you look up my profile, by double clicking on my name, and looking under the heading "replies". I have written several things about how other minerals and vitamins work with B12 and how you will get reasonably well with the right balance of everything.
Don't worry - you will get this sorted if you work on it!
This is so similar to me back in 95 when I was working. Sounds started becoming heightened in the room, some would stand out and the rest go in the background. This would last a few minutes and then go off. I had this a lot until this turned into panic and screaming attacks and I ended up in a psychiatric hospital for 4 months (3 months the following year). I believe this was all to do with B12 deficiency. I was found to be extremely anaemic and even with iron injections they still thought I was bleeding internally. I was ill 4 years start to finish, off work 2 years, but I did get better though I never had B12 injections until 12 years ago. I am about to start every other day injections as my neuropathy has been increasing and the GP practice just cut my injections from monthly to two-monthly. I have been self-injecting since April 19 every 10 days but thought i would now increase, could that be a possibility for you?
How awful for you mountainice I wish you well on your new regime and hope it works well for you.I fiddle around with my frequency ,probably too much in my case,and I always hope I can reduce as I truly hate the injections ive prob done around 70 now,I tried to increase the gap to weekly but again it’s not working for me so I need to return to every other day,I have p.a,when I’m under any stress it hits me like a ton of bricks, it starts off in a gradual way and before I know it it floors me,it’s my husband who spots the signs and then gently coaxes me into increasing again and resting more.
I think it’s good that your recognising you need to increase the frequency and hopefully you’ll get quick relief so well done. X
Thank you. I still don't know why I got better if I hadn't had B12 unless the iron was enough to do something to keep me going.
I've never noticed whether I feel worse or better at various times, I think I have got so used to feeling tired or below par for so many years I don't think I know what normal is. Mind you, I am also self-treating for hypothyroidism which I believe has gone on over 20 years or more untreated, going by my blood tests.
I really don't like doing the injections either and started them in April 19. I think I have been using the wrong size needle for me as I am 5ft 8inch and weigh 10 stone, look slimmish. I've been using 1.25inch. My husband stood by me for the first couple and was very encouraging. Now I just lay it all out on the pull-out tray next to the bed after a shower usually. I am on a local group as well for B12D and a lady on there offered to drop off a few orange 25g one inch needles, which she did last week for me to try as I had been saying on the forum I would like to try some. I did my first one with the one inch on Friday and there was a big difference. Firstly, in the look of the needle - considering it's only a quarter inch difference, it looks a lot less daunting! It was easier to go in my thigh and I ordered some straightaway. You didn't say what sort you use or if you do IM or subcut. In case you want to look at them they are BD microlance 1 inch orange 25g. Not sure I am allowed to say where to buy them on here or just inn private message.
I find at the moment I am forced to rest up even though I know I want to be getting on with things. I know I am 72 nearly and people say oh, it's your age. I don't believe that as my sister-in-law is 89 and I can't keep up with her and her energy! It is not inevitable that we go in a heap as we get older.
I hope you find your right regime. It is good your husband recognizes your need to rest. Sorry this turned into a long reply!
Hi there sorry about the delay I was galavantng lol. I use the green needle to load the b12 then I change to the orange needle to inject my upper arms ,where nurse usually does it straight into the muscle,I never have a problem doing it and like you I did it after my shower (and breakfast) in the morning I just dread it.I did buy the yellow needles a couple of weeks ago but they are even smaller and I increased my fear thinking it could possibly snap off so never used them.
Age is just a number it’s what we feel inside I’m really 38 but officially 63 lol I refuse to grow older than 38 and I’m a typical Gemini,love life and love people and just can’t bear the idea of ever feeling old ,that’s why this disease is so awful it’s so debilitating in so many ways,same with folate deficiency or Vit d deficiency and especially as in your case thyroid problems I watched my mum suffer with thyroid and end up blind because of lack of care,her treatment all those years ago was ruddy Valium ? I wish I’d had the knowledge then that I do now I’ll always feel bad about that.
Anyway your doing a grand job coping the way you do at 72 so keep your positive attitude and continue doing what your doing and well done x
I'm apologising now, at our son's yesterday. Yes, I use the green to load too. I started running at 60 which I loved and only stopped about a year back because of my knees but they feel a lot better already since self-treating with levo. Also I've had a really bad shoulder for about 3 years, been sent to physio etc, did not help. I said at the time, could it be thyroid - oh no, GP and physio said. Well, it has nearly gone since being on levo, but of course the GP would say it just got better naturally, which..... I suppooooose could be the case, but I think otherwise. Ah, my husband is a Gemini too.
I seem to hit a nerve yesterday in my leg, had a zing right down to my ankle, not that bad, had it worse with the nurse in my arm! How do you manage in the arm, I tried to do the injection with one hand in my leg the other day but just can't manage it. I hang on to the syringe with one hand and with the other, verrrry slowly push the plunger as I am frightened of it going in too quickly in case it stings or something. I always sing while I am doing the whole operation! Hope one day you get used to it! Best wishes.
Good morning.No need to apologise it’s good we all have other things to do and not stuck in here 24/7 I just pop in now and again now.
I find it really easy in my arm but lots of people say they can’t do it so your not alone.I do use one hand I have to look at it while I’m doing it,I just kind of hold the syringe underneath with two fingers and use my thumb to depress the plunger bit slowly as you say.and I watch it going in then whip it straight out lol.i always warm the ampoule in my bra or in jogger waistband and it doesent sting going in and I always pull the plunger in and out of syringe a few times before I start any loading process it loosens it up and there’s no worry of it sticking when I’m using it.Yes I agree about the nurse hurting when they do it mines is nothing like that I’d rather not go to nurse at all.
I hope your leg feels better this morning and enjoy your day we are having some lovely weather just now and I’m moving next week so I’m hoping it continues a while longer,it’ll be lovely to have a garden again I can’t wait.
Yes, I warm the ampoule that way too and loosen the plunger, so I am doing the right things. I know I will have to be comfortable one-handed in my thigh first. Once I master that I hope to move on to arm. Only thing is, I have just thought. Do you only use the one arm - if right-handed injecting to left arm, or do you manage the other way round? I was just hoping to add on another injection site as well as thigh. I do massage the areas in my legs with a bit of body lotion every couple of days so I hope that keeps the skin ok.
I should be outside today finishing off painting the summerhouse, then I can cross that job off! Hope your move goes well.
I alternate my arms I’ve did around 70 shots now and been fine,I just had to do one there actually as I’ve got a hectic day and I do get tired easily,especially if I feel stressed,so I need to keep the high levels of b12 up.
I’m always relieved when I’ve did it and had hoped to reduce the frequency but my timings always crap lol.enjoy your painting it’s the right weather for it,I was over excited this week and bought a lovely big bird house and of course I’ve not moved yet so I’m stuck with it lol. Take care xx
I did my left arm this morning and I don’t feel any difference when I do the right arm to be honest,just make sure your arms is by your side when you do it then your not tensing the muscles,it may not work for you or you may only feel comfy doing one arm initially so you could alternate between that and thighs maybe ? Best of luck xx
I sensitive to sound sometimes but I’m more sensitive to touch and light. Maybe not be due to PA but I’ve always been sensitive to loud bang sounds, touch, light
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