Hi -- I'm new here, and this is my first post. I'm in my twenties, and was diagnosed 6 years ago with Fibromyalgia/M.E.; and until recently, I took it for granted that that was what I had. However, a few months ago, I found out about Pernicious Anaemia/B12 Deficiency from my mother's long-lost cousin (a retired doctor), and on the PAS website, which he directed me to, I found I had more than half the symptoms of PA; he also pointed out Martyn Hooper's words, "The new guidelines state quite categorically that the current serum B12 test should be ignored if the patient has all or some of the symptoms of Pernicious Anaemia and the patient should be treated using replacement therapy injections of B12" and was stunned that no doctor had ever told me this before in the years and years of appointments I'd had.
And so, after waiting more than a month for an appointment, I finally got the chance to ask my doctor to start me on a course of B12 injections. I'd read a lot of other people's posts discussing their struggles getting the treatment they needed for PA/B12 deficiency, so was naturally nervous, but it went even worse than I'd feared. I'd printed out several things from the PAS website to show her, but she wouldn't listen to a word. She had this patronising smile on her face the entire time I was speaking, and then simply said that that "wasn't what she understood from her training".
She insisted I have another blood test to check my B12 level, and told me that if it wasn't deficient, she couldn't consider giving me a course of injections. I'd been to this same doctor in September and told her that my symptoms were so severe I was suicidal and begged her for help, and she told me there was absolutely nothing she could do for me -- she refused even to refer me to a pain clinic or help me get acupuncture on the NHS for the headache that I've literally had non-stop for over six months. So I guess I shouldn't have been surprised.
I'm sorry to have written such a long, complaining post, but I'm so demoralised from this. If my test doesn't show up as deficient, I don't know what I'm going to do. I know I'm far from the only one who's experienced something like this, and would love to hear anything hopeful. Thanks for reading.