Blood test for B12: I have been having... - Pernicious Anaemi...

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Blood test for B12

Chocolate41 profile image
7 Replies

I have been having B12 for 4years every 12wks.All of a sudden they have asked me to go for a blood test.It was originally 120..

Should I refuse because I feel a problem coming on.Or should I go with it and fight my corner if necessary.

I feel so well.Will just have to cross my fingers I suppose.

Has anyone else been in this situation.

Thankyou

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Chocolate41
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7 Replies
Nackapan profile image
Nackapan

Ask what the blood test is for. I was told blood tests for levels b12 while on injections was not necessary? I'm new to this and actually asked for a blood test to make sure my folate and pottassium ect okay. I'm expecting the B12 to be off the scale as only finished first loading dose . As still feel ill got my bloods done.

If you worried ask their policy on B12 injections or ask has it changed . It might be for other things?

I do hope you don't have a fight if you so well on your regime

Chocolate41 profile image
Chocolate41 in reply toNackapan

Thank you Nackapan

fbirder profile image
fbirder

Ask why they want a blood test when all the experts say it is unnecessary. Download this document from the BCSH (The British Committee on Standards in Haematology - Britain's Biggest Blood Brains)onlinelibrary.wiley.com/doi...

where it says

Maintenance treatment for patients presenting without neurological deficit is with hydroxocobalamin 1000lg i.m.every 3 months. Those with initial neurological deficit should receive hydroxocobalamin 1000lg i.m. every 2 months. No further testing for cobalamin levels is required.

Ask why they want to waste NHS money.

In fact, I would write a letter. Include the BCSH document with that line highlighted and cc it to the local news radio. They're always looking for filler and the local NHS wasting money is always news.

Chocolate41 profile image
Chocolate41 in reply tofbirder

Thankyou fbirder will take your advice and see what happens.

LQinn profile image
LQinn

Hi i have been on b12 injections as i am a coeliac for over ten years. I get the 3 monthly one. I get my full bloods done every 6 months

Av42 profile image
Av42

I got a blood test about a year after treatment began and I too was worried they’d stop my 3 monthly injections. 6 was after injection level was 1000 but doctor ignored it and when nurse who did injection told me result , just said that’s because you’re on injections now ! So you may be lucky like me .

Chocolate41 profile image
Chocolate41

Thankyou yes I hope all will be ok I hope I am worrying for nothing.

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