Feel sooo exhausted I just can’t cope with it.

[peskygnat]

I’m being told I have PA. Have had “ GERD” for 10-12 YEARS. More testing than I care to think about. Had Nissen Fundoplication. Woke up after surgery with heartburn!!! Just had another endoscopy. Gastritis. As always. Now parietal cells. Now serum gastrin level elevated. Antiparietal antibodies. Have hypothyroid. Not Hashimotos. Seeing rheumatologist for work up. ? Sjogrens. Horrific dry eyes. I have been telling all of my Drs I just feel that somehow all of this is linked together. Read about polyglandular autoimmune syndrome. My endocrinologist says that’s a real possibility. But I don’t match the criteria for type 1. Looked it up. Many different types! Docs are telling me I won’t die from stomach or esophageal cancer. I’ve read all of this crap raises the risk of this! But it’s this fatigue I can’t cope with. It’s becoming debilitating!!! B12 level 917. Not on shots right now. Taking 5000mcg sublingual. I keep thinking I’m never gonna live to old age. Someone PLZ tell me that I will feel better SOON!

[fbirder]

Gastric atrophy, positive antibodies, history of autoimmune disease, hypergastrinaemia. It certainly sounds like PA.

Why on Earth are you not on injections?

[peskygnat in reply to fbirder]

I was for years! No mention of PA until now when the parietal cells showed up on my endoscopy.

My most recent B12 level was 917. I stopped I heating in Aug, per my new dr as my B12 was 1,000. I had been told never to stop the injections. So when she said stop, I was already feeling awful. I’ve been feeling this extreme exhaustion for well over a year, but it’s worsened in the last 6 mos. Maybe longer. I grow so weary of feeling like this every single day & complaining does nothing so I just shut up & try to survive. My family doesn’t freakin’ get it. But I have been taking B12 sublingual 5000mcg . Daily. And my level is 917, from 1,000 in Aug. I told the new dr my endocrine guy wants me to stay on the shots. She’s ok with that so I will resume them tomorrow.