Just been to see third doctor in a week re B12 symptoms and informing them I will be self injecting from hereon. I’m being referred to a neurologist as these symptoms “can’t possibly be linked to b12”. I told her I am becoming more informed about this condition and made reference to this forum. She said “you must remember that most people on health forums usually have other health conditions and have other mental health problems such as depression etc. And to look at the broad spectrum of the illness and look to the people that the three monthly injections are working for.
She advised strongly against self injecting as it’s not licensed in the UK and I’m going against protocol and that they need to know exactly what I am taking. And wanted to know where I was getting it from etc as often they aren’t the real medication and just placebos.
She was understanding to a point when I said that surely most people with illnesses are the best informed having done so much research and why isn’t this listened to. She agreed with this but still was still sceptical.
It’s really opened my eyes to the struggle of everyone on here to get the Uk medical profession to look outside the box. Left more depressed than when I went, and if b12 doesn’t cause depression which we know it can, GP’s are certainly pushing it!
Won’t be mentioning self injecting anymore will just have my eight weekly and top up inbetween. Ampules and syringes on order. Being it on !