Tsh level .. help please: High to all... - Pernicious Anaemi...

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Tsh level .. help please

High to all you lovely people on this forum.. could you please take a look at my Tsh results ? I have low b12 I self inject and also have injections at my doctors but still not 100% thinking it could also be a thyroid problem. My GP said all blood results was normal apart from b12 and that’s to be expected. Thank in advance 😬

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Sharnbarwick28

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eleos6 years ago

My tsh was 4.7 and my T3,T4 low. Before i started injections i thought that was the reason for all my problems. My doctor gave me levothyroxine and did not do anything and then i started alone T3 and nothing again. I took them almost for 3 months.

After 4 injections of b12 i am almost cured. Literally i was sleeping 10 hours and i could not get out of bed. Now it's 2 am and can't sleep ,not because i have insomnia, but because i don't want many hours to sleep. I sleep 5 hours and i have energy.

So my theory is that low b12 affects the thyroid also. When you can't digest food your thyroid becomes hypo. And be carefull with thyroid drugs. Unlike b12, they are dangerous . Take them for a long time and they can do damage and your thyroid may never work properly again. I took them for 3 months and i was taking large amounts(i tried even 200mcg T3). That's like 600mcg levothyroxine. But i think that i did not metabolize that because i was not feeling anything. If i take that now i will become hyperthyroid for sure

Howard39 in reply to eleos6 years ago

This reply is not at all helpful. Thyroid drugs are not dangerous- only if you take v high doses without monitoring them.

You can’t be one hyper from taking meds just overmedicated.

Angel_of_the_North in reply to Howard396 years ago

However, you do need optimum levels of B12, folate, ferritin and vit D to be able to use and convert thyroid hormones.

Howard39 in reply to Angel_of_the_North6 years ago

Of course you do- I agree entirely. There was nothing in the reply that stated anything like that tho.

Gambit62Administrator6 years ago

sharnbarwick28 - suggest you post on TUK

healthunlocked.com/thyroiduk

TSH is only one measure and the above result wouldn't throw up any alarm bells for a GP - it's actually a hormone produced by the pituitary gland to stimulate the thyroid gland to produce hormones.

do you know if your GPs comment about bloods being good except for B12 was because the B12 was low again or because it was high - and what treatment are you now on.

serum B12 isn't a test that can be used to manage treatment of B12 absorption problems - and treatment there really needs to be on the basis of symptoms. it may be that you are still undermedicated even if your B12 levels are high ... and if they are low again then you are definitely undermedicated.

Gcart6 years ago

That TSH show that your thyroid is struggling but you really need to get, at the same time, the T4 and T3 level. Unfortunately doctors only use the TSH so it might be hard for you to get any help . Best to ask for another t est in 3 months to see how things are going. Sorry no more help

Sharnbarwick28 in reply to Gcart6 years ago

Thank you much appreciated😬

Marz6 years ago

thyroiduk.org.uk/tuk/testin...

The NHS will not do all the tests required to diagnose a Thyroid problem. The tests required are TSH - FT4 - FT3 and the Anti-bodies TPO & Tg. Testing anti-bodies will rule out Hashimotos - which is the most common thyroid condition. The medical profession knows this and still they do not test the anti-bodies and when they do they only test the TPO.

The link above takes you to the main website of Thyroid UK where you can see the companies that do Private Testing with kits sent to your home. This is well used by 100's and 100's of members on Thyroid UK - another Forum here on HU with over 77,000 members !

The above link will also give you all the information you need in understanding the thyroid

A healthy person has a TSH of 2 or below - so yes your Thyroid is beginning to struggle - so it is possible the FT4 and FT3 will be low in range when they need to be nearer the top.

I have Hashimotos - Crohns and B12 Deficiency and am usually lurking on the Thyroid forum !

Also Normal is an opinion and not a result - of course we all want to hear the word normal. They mean in range - but it is where you are in the range that brings good health and wellness

Sharnbarwick28 in reply to Marz6 years ago

O how lucky you have a trio of autoimmune conditions 😉 thank you for tour advice I will have a look at the other forum.xxxx

JanD236 in reply to Marz6 years ago

Just to mention that my GP has tested TSH, Free T4, T3 and TPO antibodies on the NHS so it is worth asking your doctor if they will do this. If not, private testing will be the way forward.

Marz in reply to JanD2366 years ago

But not the Tg. You can have in range TPO but over range Tg. I can only see a TSH on the pic above. Labs rarely test T3 if the TSH is in range ...

Angel_of_the_North6 years ago

TSH level on its own isn't really any use. You also need Free T4 and free T3 (and TPO and TG antibodies)- the actual thyroid hormones. In the UK, the NHS doesn't usually treat until TSH is way over the top of the range(>10), although in other countries you are considered to have an underactive thyroid when TSH = 3. TSH 3.3 shows that your thyroid is starting to struggle to produce enough hormones, so the pituitary gland is ramping up TSH production to try to whip the thyroid into producing more. However, you could have a pituitary problem which prevents TSH going higher even though your actual thyroid hormones are low. That's why you need all the tests. Most healthy people have a TSH around 1.2 and the majority have a TSH between about 0.6 and 2. If you are considering pregnancy, TSH needs to be under 2.5 to avoid miscarriage or damage to the baby.

Gambit62Administrator6 years ago

Sharnbarwick, I am going to close this post to further responses.

This forum is about B12, not thyroid. I would much rather see thyroid issues discussed on TUK which is moderated by people who are aware of thyroid issues.

I am not entirely comfortable with some of the comments in relation to thyroid medication - too much can make you unwell and over a period of time can cause damage.

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