B12 injections : Hi I’ve sourced b1... - Pernicious Anaemi...

Pernicious Anaemia Society

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B12 injections

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Hi I’ve sourced b12 from Germany, needles, syringes and swabs that I now use weekly. £1 per injection. This is to top up on b12. I can feel when the ‘allowed’ nhs 3 monthly jab starts wearing out.. or I ware out more to the fact. I know you can’t overdose. But to be fair could use it every two days. Does anyone else do this?

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10 Replies
Lisahelen profile image
Lisahelen

Dont forget that if you inject this frequently you need to make sure your folate is good as well as your other vit/min levels to help it work at optimum

Gambit62 profile image
Gambit62Administrator

this is an old pole on how often people needed injections

healthunlocked.com/pasoc/po...

JanD236 profile image
JanD236 in reply toGambit62

Wow that’s really interesting reading. With a much larger membership of the forum now compared to 3 years ago I wonder what results a poll today would show.

deniseinmilden profile image
deniseinmilden

Hi!

There are quite a few people who do every other day injections and some more often than that.

I use 1.5mg per day and some people do 2 jabs each day to get 2mg.

If you do you will probably need to take a broad spectrum multivitamin and mineral supplement plus extra folate, potassium, magnesium and iron.

If you need it, you need it.

Good luck with feeling better soon!

spacey1 profile image
spacey1

Could one of the admins set up a new poll to see whether the pattern has changed since the last one? And maybe include whether other supplements are taken too (like vit D, folate etc)?

Omarsasa profile image
Omarsasa

Don't take b12 shots without test it.iam over 2650 because of 10 shots every three days.I can't sleep since six months more than 2 hours.all the overdose symptoms happend to me panic attacks and insomnia.I spent more than 2 months can't sleep ten mins.plzzzzzz don't take it without test

JLB80 profile image
JLB80 in reply toOmarsasa

How is your sleep now?

Martini60 profile image
Martini60

Hi lizblow

Would you be able to give me the details of the source in Germany, as I have had no luck in my search.

Many thanks

in reply toMartini60

Gold pharma

Cherylclaire profile image
CherylclaireForum Support

Problem with the surveys is that a lot of people take many years to get a firm unopposed diagnosis of their condition, and the survey will only be open to those who have been diagnosed with PA: fewer and fewer consultants and GPs will even say "Pernicious Anaemia" let alone give a written diagnosis.

I started injecting in September every other day, because any frequency offered to me by the NHS felt like it was killing me either slowly or more rapidly- eventually and reluctantly, I self-injected and can see symptom improvements in all areas. So much so that I have started a phased return to work programme, after being off sick (and totally unemployable) for 15 months. No side effects, no miracle cure - but intend to continue until no more improvement possible and then see what a maintenance dose for me would be. This was a personal decision: my GP knows, my employers know. I'm lucky that I have had support and that investigations continue, but this is a slow process, and there are blips- days when I am worse -which feel all the more devastating because they are so infrequent and unexpected.

No adverse side effects at all, other than the fact that I am really inept at injecting left thigh because I am right-handed. My blood tests often came back at > 2000ng/L ( the highest measurable level for the laboratory used I suspect.) It is pointless anyone measuring what is in your blood after starting injections: it will just show the amount of B12 you have had injected into your system has reached your blood. Whether it is active or inactive and whether it is effective at cell level is more to the point.

Whatever you decide to do or not do, we are all different. Records of symptoms: when they appear/ when they don't can help you to detect patterns and may help a consultant too. Depends on your luck. Wish you loads of it !

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