still confused.

[stumpnme1]

I have had b12d for many years, posted on here some months ago, have had loading and now on 3-monthly injections at medical centre. I have had no improvement at all in pain, weakness, fatigue plus etc. My GP was concerned that my spine was affected and a MRI showed changes in the lumbar area but he insists it is wear and tear, not connected to b12. I. have been referred to a specialist back man and am yet to receive an appointment but am convinced I will be offered physiotherapy. Again! It does not work. However, what I wonder is if anyone else's GP tells them they have Fibromyalgia and the b12 is not important as long as my levels stay up. If it really is Fibro, should I see a Rheumatologist? To confirm? Still very fed up and feeling hopeless.

[clivealive Forum Support]

Have you had your Folate level checked stumpnme1 ?

[stumpnme1]

Yes, my bloods are all ok. I do have hypothyroidism but have had thyroxine levels checked and all is ok.u

[Nackapan]

I've now been told I've chronic fatigup syndrome another term used when something has been missed. Keep pushing for more investigations or time try more frequent b12 injections whilst waiting? I've akso been told trial and error with treatments? ? I'm getting tired repeating myself that it's not lack of motivation or depression it's pain stopping me getting on

I hope you can get as many specialist appointments as possible to get the cause . I've still not got an understanding of what's happened to me. But it's certainly not in my head in the sense some doctors think. Stay strong stay believed. Easier said than done I know . This forum is a wonderful support. TC