This is all so new to me. Help!!! - Pernicious Anaemi...

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This is all so new to me. Help!!!

Justsick profile image
13 Replies

Hello. I've pretty much had to self diagnose myself due to the errors of the mainstream medical community. I've been to Dr after Dr ,ER after ER. Filed bankruptcy already once and still no help. I found a naturopathic doctor who totally believed me just by looking at me. I start my B12 injections tomorrow. My question is. .I also have autoimmune gastritis due to the PA (or vice versa. .Idk). What diet should I follow? I know gluten, but what else helps? And anyone have improvement with gastritis after their injections? Thank you so much.

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Justsick
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clivealive profile image
clivealiveForum Support

Hi Justsick have you seen a dietitian? Silly question....

Justsick profile image
Justsick in reply toclivealive

No. Just have been scrolling the internet. I'm gluten free and following the 80-20% alkaline diet. I have lupus also and am in a horrible flare. That where the PA comes in. Thank you.

Gambit62 profile image
Gambit62Administrator

gluten free isn't necessary. The autoimmune gastritis attacks the mechanism that allows B12 to be absorbed in the ileum. It also results in lowering of stomach acidity meaning that you probably have low stomach acidity - which has pretty much the same symptoms as high stomach acidity. You may want to think about taking something acid - some orange juice or a little lime in water - when you eat to help with the digestion.

Because you are no longer able to absorb B12 you will probably be on injections for the rest of your life - though some people do find that high dose oral can be an effective treatment (>1000mcg a day).

Justsick profile image
Justsick in reply toGambit62

That makes since!!! I take betanine for digestion. I do have low acid. I take sublingual b12 right now. Shots are to expensive. I take 5,000 mcg every other day. Does that sound OK??

Gambit62 profile image
Gambit62Administrator in reply toJustsick

can't give you a definitive answer because people just vary so much in how they respond to B12 - some find sublinguals work and others find they don't. If the sublingual is methyl you could try adding some adenosyl if you find that methyl isn't doing the trick - or switch to hydroxo

Justsick profile image
Justsick in reply toGambit62

Sounds good. Thank you!!

Highland49 profile image
Highland49

Hi Justsick,

Apple cider vinegar is good for increasing stomach acid. This hopefully will rebalance your system. I mix mine with raw honey each morning.

Hope that helps.

Justsick profile image
Justsick in reply toHighland49

Thank you!!

Frodo profile image
Frodo

Although as Gambit says, it may not be necessary, I have had a lot of improvement by going gluten free. it's worth having the test for that if you haven't already first, as it's a difficult diet and without a firm diagnosis it can be hard to remain motivated. Eating away from home is particularly hard.

I also have phases of using Bromelain, a digestive enzyme which I understand is mildly anti inflammatory and analgesic (trying not to incur the wrath of the scientists on here! This is my experience not medical advice!)

I have tried probiotics as well, people here recommend 2 brands but not sure I'm allowed to advertise, and they did improve my gut function, bloating etc but my migraines became much much worse so that I could not persist with them.

Justsick profile image
Justsick in reply toFrodo

Thank you.. I take probiotics too. Only 3 days in so.. We'll see..

Justsick profile image
Justsick in reply toFrodo

I take a really good probiotic but have only been on it for 4 days. We'll see!!

Frodo profile image
Frodo in reply toJustsick

I should think you'd see some effects after about a week, I did.

Justsick profile image
Justsick in reply toFrodo

Thank you!!

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