Advise please

[Carolanne512]

I've had Pa for 10years had regular 8weekly injections,recently had time altered to 12 weekly, but I got so drained I asked if I could have them at 10 weekly.i had my jab on Monday,on tues blood tests for vit d deficiency and diabetes,but results came back as vit d deficient,and way too high vit b12..doc says no jabs for 5months and blood test to determine lev we ls before next jab at 6months.As I had vit b jab day before blood test I m not sure it's a good reading.and if it was so high then how come I've been so ill 3 wks prior?

[clivealive Forum Support]

Hi Carolanne512 is your doctor on work experience or what?

It is sheer madness to test your B12 levels so soon after an injection and as you have P.A. they are for life anyway.

Demand your doctor to restore the eight weekly schedule and quote the N.I.C.E guidelines below.

cks.nice.org.uk/anaemia-b12...

Also ask to have your Folate level checked as this and B12 help your iron to function properly.

If you cannot get anywhere I suggest you join the Pernicious Anaemia Society. It costs but £20.00 for a year's membership and they have been known to intervene with the member's doctor.

I'm not medically trained but there are others on here who will give you good advice. Meanwhile I'm still "fuming" at your doctor.

[Gambit62 Administrator]

As Clive says, if the blood was taken just after your shot then the result is meaningless.

Treatment should not be based on levels in serum anyway - its a guide only before injections but injections introduce a new factor which means that the normal range doesn't apply anymore.

It is possible to have high levels of B12 in blood but still be deficient at the cell level - one reason can be that people react to high levels of serum by shutting down the process that enables B12 from your blood to pass to cells. The most effective treatment for this is to keep serum levels very high so enough manages to beat the reaction and gets through to your cells.

Would you be able to write to your GP? state your concerns that the blood test has given a distorted result because it was done so soon after your injections and pointing out (if you are UK based) that current UK guidelines do not recommend treating an absorption problem on the basis of test results anyway.

If you aren't UK based then treatment protocols may be different.