I was diagnosed with PA a few months ago and have had my loading doses and am now on my first 12 week waiting period till my first regular injection. I am a mum with 4 children aged between 5 and 12 and I am really struggling with fatigue. I feel wiped out so much of the time.
My husband really gets annoyed at me being so tired all the time and why I seem so down. He is a huge shopper and loves nothing better than days out walking around shops for hours and hours on end, I just literally am unable to manage this anymore and have been trying to keep doing this for his sake but he gets angry at me when I tire when we are out and says I'm grumpy but my legs feel like jelly.
He also has a tendency to leave much of the work in our home to me, raising the children, taking them to clubs and school, day to day cooking, washing, cleaning, shopping all is my area. He suffers from severe gastric reflux himself and I do try and understand his condition and help him out with rest and extra time to cope with his condition but he doesn't seem to understand mine. I literally am the one up each day with the kids whilst he says his condition means he can't sleep so he stays in bed sometimes till one or two in the afternoon.
How can I help him to better understand as he says now I've had my loading doses I should be "better" and he doesn't seem to understand that I may never feel back to normal.