I have never been diagnosed with Pernicious anaemia, I have an underactive thyroid and diabetes, amongst other things.
I have been on 3 monthly injections for the last 4 years and my levels have never really improved and I was wondering if there was anyone out there who has managed to get their doctor to do their injections more regularly as mine wont.
I have posted my most recent tests.
Thanks for your help in advance.
Written by
WiddyWooo
To view profiles and participate in discussions please or .
so that is about 6 months - is this the normal time-scale for having your tests done - and half way between your injections.
the results are lower than I would expect for someone on B12 shots - the amount that is given to you in a shot is about 3 years worth of B12 - it is gradually removed from your blood by your kidneys - about half of it goes in the first 24-48 hours and then the rate of loss gradually decreases.
Suggest that if you aren't already a member of the PAS that you join them and then contact them - they will be able to help you with how to explain to your GP that your treatment is not adequate - and if you have neurological symptoms (eg pins and needles) definitely isn't the correct treatment - as maintenance should be 8 weeks if there is neurological involvement. They can also help follow up with GP if a personal contact from you doesn't work
I am getting my injections every six weeks. It took a while to convince my GP, so my husband came with me for a double appointment. I had a list of all the continuing symptoms, and initially I asked if she was prepared to give me a trial period of more frequent injections. This was agreed to and after having approximately eight injections every six weeks I made another appointment to see her. I again took a list with me of all the improvements in my symptoms. I asked if I could pay for the additional injections as it had made such a difference to how I was feeling. She told me that wasn't necessary and marked up my records to include the six weekly injections from then onwards. I am extremely grateful that she was prepared to agree to the trial.
Perhaps you could try this approach with your doctor?
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.