Hi....I'm in a bit of a confusing place regarding B12 deficiency. I was diagnosed in 2011, after a year of symptoms becoming progressively worse. I literally had every symptom on the list, and was really unwell. I had had neurological symptoms since 2007 and had MRI scans etc, B12 was never tested at the time, so they couldn't find a cause for my symptoms, and even before then my health wasn't great, right from late teenage years....I've really been through it basically, and trying to lead a normal life has been difficult due to being unwell a lot of the time. I was diagnosed when an immunologist (as I had also started suffering from angioedema) picked it up on a blood test. My level was 154, which my GP said wasn't THAT low, and made me feel like the immunologist was just making a big deal out of nothing (I had no energy, my speech was affected, I had pins and needles all over my body, especially hands and feet, really dizzy all the time to the point where I felt like I was drunk, I had sore lips and tongue, really pale, memory problems and felt like I was in a fog and that's just to name a few of the symptoms, I was barely functioning, at all. I was prescribed B12 injections and literally within a week or so I felt amazing!!! All of the symptoms I'd had for years disappeared! I was then given the standard 3 monthly B12 jab (which was not enough, and all of my symptoms came back, then they took me off them completely as they said it was for people who can't absorb it (which I really don't think I can). I knew from researching it that my illness was definately caused by B12 deficiency, that I was more than low enough to be really ill with it, and that a lot of people don't manage on 1 injection every 3 months. I knew from what I had read and my own experiences that I would get nowhere with the NHS so I found out about self injecting. Within days of self injecting, again I felt SO much better, and injected regularly for 3 years....most of that time I stayed pretty well. Then I had symptoms of low pottasium, so I came off it and was scared to inject incase it happened again, so I stopped, then over the next year, sort of gave myself loading doses every few months (I would feel amazing after and then symptoms would come back again, after a while of not injecting) but on one occasion my pottasium dropped again, and it scared the hell out of me. When I go to my GP I get nowhere as they refuse to believe that I need to inject more than once every 3 months, and that any symptoms I have between then is nothing to do with B12...I really don't know how they can say that. I am back to self injecting and feel a lot better for it....I space the injections out every few days and will do so until I find a maintenance level that works for me basically. I would happily do this without involving the NHS doctors anymore now. However it caused me to have problems at work, during a bad patch, and now occupational health are insisting I go back to my GP and get referred to a haematologist. I know from what I've read the haematologist won't tell me any different and I know that my GP probably won't refer me, but work are insisting on it....I don't want to end up looking like a hypocondriac as I know I'm not and I also don't want to come off my self injecting just to prove to the haematologist that I have it (cos it will take ages for the injections to leave my blood, I can't manage without them). They seem to think if my B12 is within the normal range there is no problem....but if you have pernicious anaemia your B12 needs to be at a high level for a long period of time, to get and stay well....GPs don't seem to understand this and they put my symptoms down to chronic fatigue or anxiety or atypical migraines....What should I do in this situation? Sorry this post is so long.