I want to thank everyone so much. After four years of being diagnosed with ME and losing my career, income, and very nearly my spirit I decided to go back to the GP (I had consigned the NHS to useless because if the ME "treatment").
I decided I wasn't going to put up with the new symptoms any more. My levels were around 400 so my GP said I can't be treated. I took husband and presented the symptom checklist and BNF guidelines and she agreed to write to a haemotologist. The good news is he upheld the BNF guidelines so I got five loading doses and 3 monthly follow up with no testing needed.
I've since re read the guidelines and highlighted my severe neuro symptoms and asked for a loading dose of every other day for the full three weeks (10 jabs) and two monthly follow up for life. All of that is directly down to the community on here and now to have had the NHS listen (and believe me) has improved my spirit no end....even noticed by my 16 year old son!
My question is about Folate and ferritin. My levels when tested in August were :
I have an appt in Sep with the same Doc about these as I keep reading I need folate to absorb b12 but I've googled and searched and can't find what it is that I need to discuss with her so feel a bit unprepared. Can anyone help with these results and offer (unqualified!) best practice advice on folate and ferritin?
Thanks so much. Enjoy the sun
I tried to find the pinned posts on the homepage but being a Luddite I can't find them!