Wrong b12 😞

[scorpiojo]

I ordered 100 1mil ampoules of the C b12 not the H b12... What's going to be the issue with this? I had the Hydro at the GPs and I had bought 10 from mycare and used... I clearly didn't order right:(((

[Gambit62 Administrator]

It may not make any difference - some people even find that cyano works better for them than hydroxo.

If it's any consolation I did the same with my last order - still working through the cyano - certainly not doing me any harm.

[scorpiojo in reply to Gambit62]

I feel a nit... So are there any reports it's not the same etc? Should I actually notice anything different? 😊 Thanks

[Gambit62 Administrator in reply to scorpiojo]

until you try you won't know. As far as I am aware there are no tests available that will predict how any one person is going to respond to each form of B12 - all you can do is try. I can't say that I've really noticed much difference between the hydroxo and the cyano - haven't kept a detailed list of symptoms and as I have so much other supplementation going on difficult to really draw conclusions but I do think I retain cyano a bit better than hydrox

[scorpiojo in reply to Gambit62]

Thanks... I'll have to just try it.. 😂 hoping you carry on doing well... Yes, I have a little cry sometimes thinking about all the vits I am on wondering and hoping they are the trick to the fatigue x

[Lisahelen]

Have you actually recieved it yet?

If not, it might be worth you contacting them to alter your order.

We might not know german as a language but i would think that someone at the other end can talk english.

[scorpiojo in reply to Lisahelen]

Yes, I received it this morning.... On with the new... :/

[Foggyme Administrator]

Hi Scorpiojo. Just to let you know...seemed to recall that the maintenance dose for cyanocobalamin is given more often than the maintenance dose for Hydroxocobalamin.

So just looked up the patient information leaflet (listed under trade name, Cytamen) and it states that the maintenance dose should be given every month (as opposed to the three monthly regime for Hydroxocobalamin).

I guess if you were injecting more regularly than the three monthly for Hydroxocobalamin, then if follows that you would have to inject even more regularly than than one monthly for the cyanocobalamin. If you know what I mean...

I think that clivealive uses cyanocobalamin, so,perhaps he will advise if he sees your post and this reply?

Would be interested to see how it goes....was thinking of giving it a go (Iseem to be becoming a little sensitive to the Hydroxocobalamin injections).

Good luck with it.

[scorpiojo in reply to Foggyme]

oh I was going to do maybe once a week as 100 will last a year ... The stuff lasts until 2019... Yes all experiences and thoughts more than welcome... It's a life saver x

[fbirder in reply to scorpiojo]

As with all these things - experiment.

The best course is to decide on a frequency and keep a diary of symptoms. If you find they start getting worse before the next jab, then decrease the gap between them until it's OK most of the time.

[scorpiojo in reply to fbirder]

Thanks fb x... With me I have the d and b12 thing ferritin and folate thing and thyroid.. It's so hard to know what causes bloody what... Add I feel the adrenal's are not in good shape, how do you even start to guess... If there were tests you got that you would then go on to be treated for it would be helpful... This taking mountains of vits t3 and having to space them out is stressing me out... Vicious circle 😊

[clivealive Forum Support]

Hi scorpiojo I've been on Cyanocobalamin 1000mcg every four weeks since 1972 as that was what I was "put on" when diagnosed with P.A.

I was "tried" on Hydroxocobalamin at some time during the 80s but had some side effects and I couldn't last the three months so was put back on cyano.

The perceived difference is that the cyano doesn't "remain in the system" as long as the hydroxo which is borne out by the difference between the injection intervals - four weeks as opposed to 12 weeks.

As far as I'm aware the effects are the same just that cyano is needed more frequently.

I hope this helps.

[scorpiojo in reply to clivealive]

Ouch... More pricks and needles then... Thanks Clive... When you say side effects what may I ask were they... Thanks for reply 😊

[clivealive Forum Support in reply to scorpiojo]

I recall having headache, dizziness and a rash but as no two people in the world are the same I cannot be taken as the norm.

As fbirder says "As with all these things - experiment." and find out what's best for you

[scorpiojo in reply to clivealive]

Of course... What a shame you had that to deal with... Glad you could eliminate it to the ampoule's... Thanks for your help I appreciate it x

[Ktululady]

I did the same thing and yours is the third message I have seen like this lately, I think they are sending out the wrong one.

[scorpiojo in reply to Ktululady]

I might look actually then.. Same boxes nearly.... X😊

[Galixie]

Before you start taking the cyano, do you have any family history of Leber's optic disease? If you do, you should not take cyano. Also, if you happen to be a heavy smoker or have high occupational exposure to cyanide, it is a good idea to avoid taking cyano. Otherwise, it is a perfectly safe and widely used version of B12. I took it for years before recently switching to methyl for price point reasons.

[scorpiojo in reply to Galixie]

Would a Glaucoma link be a concern

[Galixie in reply to scorpiojo]

Probably not, but I am not informed enough to know. Here is a description of Leber's: ifond.org/lhon.php3

[scorpiojo in reply to Galixie]

Thanks I did Google it and think I will be ok... IOP is responsible for Glaucoma and destroys the optic nerve.. This is something else... Thanks I very grateful for the heads up as I will ask before taking

[ndodge]

Hi, I have secondary glaucoma from using corticosteroid drops in the eyes for a chronic autoimmune eye disease. I used Cyano for a year with no problem to eyes, also told my ophthalmologist and he was okay with it.

[scorpiojo in reply to ndodge]

Thanks xx I have a link to put up watch this space