Sorry I ask so many questions on this forum but you guys are great and the information is priceless.
Can you get blood pooling if ur b12 or folate is low? I can't even sit up straight for a minute without having to put my feet up because of fatigue and dizziness etc. Does this sound familiar? Love to you all hope ur all ok
Dizziness is one of the symptoms (there are so many) of B12 deficiency, as is fatigue.
Have you been officially diagnosed?
i haven't, my b12 and folate is low though
Do you know your actual levels and lab ranges? Would suggest getting copies and posting on here. Also worth posting your full blood count and thyroid function tests (this is common in B12 sufferers).
Have you checked out the Pernicious Anaemia Society website? Also B12d.org? Lots of info on there.
We can help further and make suggestions from there.
My FBC was normal except Lymphocyte count with was above range
Lymphocyte 4.2 1.0 - 3.5
B12 222 pg/ml 197.0 - 866.0
Folate 4.8 4.6 - 18.7
Ferritin 44 30.0 - 400.0
tbh im lost in what to do lol, being treated for POTS
I am a nurse and "normal" is not the same as "optimal". Blood count can be "normal" but is masked by folate from our diet. Low iron can also normalise blood cells which masks enlargement of the cells as it makes them smaller, if you get my meaning, ie cancelling out large cell appearance.
Your B12 level is appalling, it is very low but you are not considered deficient til it hits rock bottom ie under 200. I started having neurological symptoms at a level of 419, it plummeted to 234 within 2 weeks, yet still my GP thinks I am fine. There is a large number of ppl who get symptoms in this "grey area" (200-450) and the new guidelines state that you should be treated if symptomatic and ignore bloods. It you google "British Committee for Standards in Haematology cobalamin deficiency" you will be able to view the updated (2014) guidelines. Summary also on the PA Soc website
wow! what symptoms were you getting, are you now supplementing? did you improve if so?
I have found a doctor who would treat me... I am getting injections now... I started getting burning feet and random pins and needles a few months ago, a few weeks later really scary stuff, my sight started deteriorating, cognitive issues like memory loss, confusion, couldn't recall names/words, balance issues, foot drop, leg weakness... Long list. I am not prepared to have permanent damage and after 2 weeks of injections so much better. My mental health is in tatters though coping better now that I physically better. I am risking loosing my job and my 7 yr old has symptoms, her B12 is 230 and her iron stores are appalling. I am so worried about her... My life has been hell and the doctors have lacked compassion and think I am nuts...
iv been getting the same from the docs for 6 years now 
when you had burning feet did they go red/purple colour? iv got a phone call from the doctors tomorrow, im preying he will argue on injection but i doubt it i hope your 7 year old gets better 
Hi my feet just felt like I was standing in a very hot bath! No colour change. You should download the guidelines, I'm not very good at posting links if you ask Sleepybunny she will do it. Better to make a face to face appointment and tell your GP you have some information to hand in that you got for the PA Soc and can you make appt next week etc.
My poor wee girl is showing signs, she already has some health issues so I have discussed it with her doctor who is taking things seriously. You can pass it on as B12 depleted mothers will have poor stores so the baby gets poor stores. Especially if you breast feed, which I did. She was premature which is also probably down to B12
also thank you so much for replying im super grateful
No worries, bedtime for me... X
Hi leahcim. My wife who had serious neurological and physical symptoms with B12 deficiency also had blood pooling in the soles of her feet . She mentioned this to her GP , heamatologist and endo but never got an answer as to the cause . We assumed it was B12 iinked as it cleared up when she recieved the correct treatment for B12d neurological symptoms and not returned since . Thankfully her GP is very supportive not all are . I hope you get sorted soon .
Regards Skeeter
may i ask what treatment of b12 she received?
She had 3 months of alternate day B12 injections . They made a huge difference very quickly , she was also very low in vit D and D3 tablets helped with bone and joint pain . She still gets a bit of tingling and neuropathy occasionally but its as good as it gets .She is now being referred to a neurologist . But the her health has dramatically improved . She will now have injections of B12 every 2 months .
Regards Skeeter
Forgot to mention she is also being tested for celiac disease . We think that's very unlikely though .
oooooo, what b12 results did she get when she had a blood test? hope you dont mind me asking but ur giving me hope! 
Her B12 was 112ng/L range 150-750ng/L and she was very I'll . A colleague of hers had level of 60ng/L and was just a bit tired . I suppose it's the luck of the draw . Had mine tested recently told by my GP no injections till it reaches 200 , its 252 . My ferritin and Vit D were under range so was given a prescription for that . I have found from experience that Thyroid , B12 and iron deficiency can all present with similar symptoms . Good Luck .
Skeeter
wow mines 222 she must have been so unwell! at least shes better now did you feel better taking ferritin? sorry for asking so many questions
Not a great deal better I suppose the iron levels take a while to build up again . The D3 capsules I was prescribed helped to quickly ease joint and bone pain . I am also hypo which doesn't help .I have been on Lansoprazole for many years and that is probably causing a malabsorption problem .
Cheers Skeeter
im on omerprazole hope you get better thanks for replying to me etc
Can PA antibodies be reversed??
Quick PA query
Does PA cause a Vitamin K deficiency?
New - help making sense of blood results 
Existing PA and enlarged red blood cells
