Extra B12: Hi their, I have PA and have... - Pernicious Anaemi...

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Extra B12

annebalto profile image
7 Replies

Hi their, I have PA and have 12 week injections. I need to have extra B12 in between , injections. How do I go about this? Online? Over counter? What do I order? Needles ect. Thank you for reading

Anne :)

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annebalto
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7 Replies

Hi annebalto ,

This below listed (links) is what most people here use, and where they get their supplies, you can buy most forms of injectale B12 in most EU countries at pharmacies with out a prescription, just not in UK and Holland. Also OTC in Australia, most of Sounth America etc.

Injectable B12.

goldpharma.com/article/1/ Search for 'hydroxocobalamin' and select: B 12 depot-rotexmedica 10 amp. (10x1ml)

mycare.de/ Search for 'hydroxocobalamin' and select: B12 DEPOT ROTEXMEDICA (10x1ml)

oxfordbiosciences.com/vitam... methylcobalamin, one has to mix it with saline solution the info is on their resources page (go to bottom of page) oxfordbiosciences.com/resou...

arnika-apo.de/ they sell methylcobalamin but its not visible on their website, you have to contact them, they speak english :

Tel.: 089 / 613 809 58

Fax: 089 / 613 809 59

Das Telefon ist an Werktagen Montag bis Freitag von 8:00 Uhr bis 17:00 Uhr besetzt.

E-Mail: service@arnika-apo.de

Syringes and sharp boxes:

medisupplies.co.uk/

medisave.co.uk/consumables-...

I inject IM (in a muscle), I inject prescribed NHS hydroxocobalamin, and selfbought cyanocobalamin (OTC in Spain), I find the B12 ampoules with 2 ml hurts/ stings less because it's half the concentration. B12 is thick stuff and the stinging is the fluid pushing apart the muscle fibres, so diluted its les thick and you inject slower, also 2ml is easier to suck up in syringe I find, if you leave some its not to much wasted... But we all are different. I prefer cyanocobalamin, it does not sting, but needs to be used more often.

I've never used methylcobalamin so can not comment.

For pain free IM injections:

Warm up the ampoule of B12 to body temp

Relax the muscle, give it a good shake

Inject slowly, if you feel it hurts start again is what I do.

I do not stab, I go slowly and on your leg you can find areas that have barely any nerves, its only the prick trough the skin I feel then. Also having the eye of the needle facing you makes it easier to go in, why I do not know. I inject after a hot bath so my skin is soft.

Some more in here:

IM:

faculty.ksu.edu.sa/gemeay/s...

Sub cut:

cc.nih.gov/ccc/patient_educ...

If you go to the old PAS forum you will find numerous posts in the diagnosis and treatment section about self injecting, in the living with PA section there is a topic called tips for more comfortable B12 injections, see:

pernicious-anaemia-society....

I hope the above all help you,

Kind regards,

Marre..

Also some more info in this post:

healthunlocked.com/pasoc/po...

annebalto profile image
annebalto in reply to

Thank you Marre for your reply. I will look into this. Anne :)

shevie profile image
shevie

I have injections every 8 weeks, i live in Scotland. Interestingly, I had a trip to a singularly patronising and unpleasant haematologist just a week or so ago and the only really helpful and NEW information she gave me was that the Government now recommend that B12 injections are given at 8 week intervals. Please remember we are in Scotland and so this may not apply to rest of UK but I would certainly check, it may be the thing that sorts you out, you never know!

annebalto profile image
annebalto in reply toshevie

Thank you Shevie, I will ask my doctors.

Anne :)

Secondchance profile image
Secondchance

Hi did she give it in writing or as a leaflet? That would be helpful for the rest of the UK as we can't be that genetically different 😜

shevie profile image
shevie in reply toSecondchance

she spoke it, but seemed very clear about it

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