New to this .... : New to this!! Hi... - Pernicious Anaemi...

Pernicious Anaemia Society

32,623 members23,985 posts

New to this ....

Boo74 profile image
6 Replies

New to this!!

Hi have recently been diagnosed with PA. I have a few questions as follows:

1. I have had persistently high blood pressure for over 9 months - can PA cause this?

2. Following loading dose (5 shots) I have experienced painful large blind spots on my face, scalp and neck - is this normal?

3. Following loading dose I have had lower back pain (I have suffered with this in the past but i normally know what triggers it - in this case nothing other than injections)

4. Following loading dose I have experienced pain in middle finger on right hand which is causing difficultly in carrying things and in the last couple of days I have experienced pain in other fingers on both hands (also have numbness in side of left toe for the last 3 months and pain in feet)

5. Following loading dose, skin feels like very fine sandpaper - is this typical?

Any info would be greatly appreciated.

Thanks

Boo74

Written by
Boo74 profile image
Boo74
To view profiles and participate in discussions please or .
6 Replies
pvanderaa profile image
pvanderaa

I get sandpaper skin a day after being out in the sun. The B12 injection makes some people photosensitive.

Spots (pimples) is another side effect. It seems like hormones reactivate. This does settle out.

Increased nerve pain is an indication, at least in my case, that B12 is doing its job and making the nerves function again. This pain is an illusion to the brain. It should also subside as the brain recalibrates. It is not pleasant, in my case it was a sore tooth that seemed to go crazy after I got my jab.

Right after starting injections is like a roller coaster ride. Keep a log of your symptoms relative to the day of your injection and see which ones repeat after the next jab. Some will disappear as you improve.

Boo74 profile image
Boo74 in reply topvanderaa

Thank you for taking the time to respond

Gambit62 profile image
Gambit62Administrator

Think most of your questions have been answered by pvanderaa - just the high blood pressure one that didn't seem to be covered.

B12 Deficiency can cause high blood pressure ... but then so can a lot of other things

Boo74 profile image
Boo74 in reply toGambit62

Thank you for taking the time to respond

pvanderaa profile image
pvanderaa

Regarding your question 4, the long nerves to the tips of the finger and toes are the ones with the most mylin sheath and most prone to damage from low B12 and/or low Folate. Also they are the first to respond to b12 so you can get what has been described as pins and needles in your fingers and toes.

pvanderaa profile image
pvanderaa

Regarding blood pressure - I'm on Cyano-B12 injection, once a week and have low blood pressure. The nurse comments on it each time she takes it, but it has been consistent so she does not appear concerned.

Not what you're looking for?

You may also like...

UK NHS - PA treatment & management experiences

I was diagnosed (by my GP) with PA about 2 months ago and so far I’m on the ‘standard’ NHS...
Pa234aw profile image

Am I being fobbed off?

I have Hashimotos and after a recent spell of feeling exhausted beyond belief but also tense at the...
Ordinary39 profile image

New to this group

I have had PA for 3 years I collapsed and was rushed to hospital and was diagnosed .I have never...

b12 loading dose pain

hi, I’ve on my 5th loading dose of b12, and I have really bad nerve pain in my hands and feet, I’m...

B12 side effects

Hi, Has anyone had any side effects from B12 injections. I have had burping and rib pain. This...

Moderation team

See all
Gambit62 profile image
Gambit62Administrator
Foggyme profile image
FoggymeAdministrator
taka profile image
takaAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.