As 72percent of the human race have a... - Pernicious Anaemi...

Pernicious Anaemia Society

31,973 members23,121 posts

As 72percent of the human race have a lesion on their liver preventing them from absorbing the correct amount of b12

tracyxyz profile image
5 Replies

do we all have pernicious anemia?

Written by
tracyxyz profile image
tracyxyz
To view profiles and participate in discussions please or .
Read more about...
5 Replies
Erainy profile image
Erainy

Hi,

Could you tell me where you've obtained your fact from?

tracyxyz profile image
tracyxyz

my fact was obtained from the internet. my liver was in extremely bad state but once I fixed it by using chelation I then received a extremely bronze skin ( I am obliviously absorbing melanin) and now I have absolutely no body odour, but the Nero transmitters can not be working as I still have ms even though now I no this disease is prenesis anemia

in reply to tracyxyz

Have you had your adrenals checked? A permanently tanned skin or hyperpigmentation is a symptom of Addisons Disease, some useful info in this leaflet:

addisons.org.uk/comms/publi...

Perhaps take to your GP and get some tests done, in line with the following from the leaflet:

"Electrolytes may be borderline/normal where the patient is not in crisis.

Blood glucose may be borderline/low, especially in adrenal insufficiency of pituitary origin.

The diagnosis is highly likely if 9am cortisol is less than 100nmol/L - unless the patient is already on oral or inhaled steroids.

The diagnosis is unlikely if cortisol is greater than 400 nmol/L - but not excluded if the patient is acutely unwell at the time.

For values between 100 and 400 nmol/L the diagnosis can only be excluded by a short Synacthen test (ACTH stimulation test). Patients in the early stages of disease may have 9am cortisol values towards the top of this range."

If you have the 9am cortisol test get a copy of the result, as the lab ranges are usually not in line with the above recommendation. My result was between 300 and 400 and I was told I was perfectly normal. I intend to have a retest now that my B12 is properly treated to see if it's improved. If it hasn't I will ask for a short Synacthen test (low dose sst is best).

Hampster

Erainy profile image
Erainy in reply to tracyxyz

Would you mind sharing the page link? I would also like to have a read. Thanks.

tracyxyz profile image
tracyxyz

As my skin is bronzed not tanned. I know it's not Addison's disease. It only goes bronze after sun exposure. I came into contact with professor Peter h fraser who took 8yrs to diagnose me using saliva test with b12 diffiency I had decided not to have blood test as I suspected they were false positive. Only to find that the salivia test was also a false positive.. I have also had two normal lumbar punctures, but despite this my nuerolgist still decided to diagnose me with ms.

You may also like...

B12 from the liver to the body?

I have PA and was diagnosed in April after MRIs and Nerve conduction tests ruled out other...

Has anyone experienced foot drop from b12 deficiency? Has anyone had spinal lesions also?

Having difficulty ordering B12 injections from VersandApo.

I have ordered over 2 years ago but you could click on English to translate page. I’ve been on...

i have some spare B12 Hydroxocobalamin ampules from Versandapo.

ordered them together but didn’t need them all so I have a few packs spare to give to someone who...

Have just been able to order B12 ampoules Rotexmedica B12 depot from www.bodfeld-apotheke.de

above German online pharmacy. Have not been able to order from them all this year . Today I placed...