After 12 Years of Parkinson's, Whats next? 2000 to 2012 Where next?

Along time ago, just over 12 years in May. My Parkinson's life began, It doesn't matter what age, I was? Parkinson's doesn't care, it's fair that way, in fact it's the only time it's fair. If you have Pd, you will know the battles that came next, I have tried every Pd medication, and they have tried me. Now I have more of time than on, I just wonder when this magical cure is showing up, it was 5 years away in 2000. I feel like 1 of the test mice, that they try this drug, mix it up with this, that and a wee bit of that. No one knows what their talking about, they are running about like the test mice, in fact the test mice know more about Pd, than they do, because you have to have Pd to understand it. My point the drugs don't work, the side effects are to costly, but we most soldier on, I honestly believe that the magic cure will come from what we eat and think, I fight Pd every day, I insist it gets out of my body, every morning, it just won't take the hint, Vitamins is what we lack, so let's replace the vitamins. Go sit in that park, we still have a brain, use it, and to all those people that don't have Pd, yes the person inside that body still thinks, and loves, has feelings, can get angry, can get sad. CAN BE HAPPY.

14 Replies

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  • Well said

  • I agree with what you say, thanks for posting this.....you sound pretty positive

    Take care

    Andy :-)

  • I endorse all your comments. Where is that CURE?

  • You are being so Philisophical about it and positive

    Yes the side effects of the drugs are often worse than the complaint

    Will the cure ever come?

    We shall have to wait and see.

    I wish you all the very Best.

  • To many false dawns where meds are concerned,we hear on a regular basis headlines like ''a cure for parkinsons is close'' and then is never heard of again,usually due to over optimism or that the med is only 99% safe,i,v found that most GP,s know bugger all about PD and some neuros are at best ignorant,you have to have it to understand it,i,v been through 3 neuros and still cant get any relief.

  • I suppose that after we were Dx we all asked how soon would there be a cure. I guess the answer you got was “Five years.” The answer I got was “Ten years,” and my informal survey suggests that the typical answer is 5 - 10 years. That was the common answer ten years ago and it is the common answer today. Yogi Berra was right when he observed: “It's tough to make predictions, especially about the future.”

  • hahaha :D

  • - YES - WHERE IS THE CURE ? I SAW MY NEURO ON FRIDAY TO SORT OUT MY MEDS AGAIN - I ASKED HIM HE THOUGHT I WOULD EVER WALK AGAIN - HE SAID HE DID NOT KNOW - I CRIED

  • Food is a big part of our environment that is poisening us from the day we are born. A very interesting book on the subject of food and our brains is "Minding Your Mitochondria" by Dr. Terry Wahls who is curing her MS with diet. You can also check out her website.

  • I quite agree. I happily agreed to every clinical trial for my neuro, a warm and caring researcher, but every drug made me worse. Now I will only do clinical trials that do not involve drugs, especiallly those that pay ! If I found a spot in the world (like MJF in Bhutan) where I had no symptoms or less, I'd move there :D

  • Thank you for being honest. (& I only had to re-type that 4 times!)

  • :D

  • i wish some one would find a cure just dxs in march at 51

  • Well said!

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