I have never thought much about healthcare, medication, research and definitely not about Parkinson’s disease. Well, here I am, 48 years old, cursing myself because I may have forgotten my meds at home and I have hundreds of questions and views on research, medication and healthcare organization. I went from completely ignorant to being an expert on how a person with Parkinson’s experiences the disease.
Or is it really a disease?
Recently I helps a woman with PD who just had a DBS and was it wasn’t working properly. She was completely “frozen” to the ground, but with help she could move forward… How?
By walking consciously,
by walking in the same pace,
by walking over lines in the street,
by walking towards goals.
Then we reached a staircase and I had only heard about it before, never seen it myself.
She said: give my my bag, now I am OK. And then she literally ran up the stair!
I am not a religious person, but maybe, just maybe the person Jesus told: Take your mat and walk, had Parkinson’s!
In the case of the frozen woman I met with the DBS, she had recently had a tuning of the DBS and the technicians had made a mistake with the device, so the week after she was fine again. But even when she couldn’t walk on the ground, she could run up the stairs!