I have a lot of friends and family that live far away and I hardly ever see them. Well pretty much never. The vast majority of them don't know what I'm going through because I haven't told them. For the longest time , I couldn't put my finger on why I try to hide the fact that I have Parkinson's. Finally came up with the words to describe how I feel about letting loved ones know. It's because I don't want this disease to define me. I don't want to be thought of as the guy with Parkinson's. Yet every minute of every day some limitation I have to deal with reminds me that I am dealing with this, be it slowness, stiffness or tremor when I try to do something with my hands, and so it really creeps deeply into my soul! You can't ignore it . How do you cope with this? I know people are supportive but I would never want to be the guest of honor at a pity party. As time goes on, the symptoms get more and more obvious, but I still feel like I'm just in the beginning of this stage. Up until recently nobody really noticed. Now it's getting really hard to not notice. I also think I might be a bit of a perfectionist and am holding myself to impossibly high standards. By the way , I was diagnosed 8 years ago so I guess you could consider my progression to be slow, so I guess I'm pretty lucky in that sense.
As of today I am doubling my thiamine!
I welcome your thoughts on this, thank you .