I am looking for some advice please on alternative therapies, especially from anyone like me who has chosen not to start medication.
My story is as follows:
I was diagnosed formally 3 years ago; had shoulder pain for 2 years prior to that and have probably had symptoms for a few years prior. So probably started symptoms mid 40s.
Since then I have managed my PD medication free other than for a few moths where I tried an MAO-B inhibitor (Rasagilene), but it had no discernible effect, so I stopped it.
I am a big believer that Parkinson’s can be halted, reversed and even cured, but feel that modern medicine is looking at the disease the wrong way and is typically looking to address the symptoms rather than the root cause. I found everyone from the medical side uninterested in an alternative approach and was continually told to ‘take the meds’. As I haven’t done this I am not really being seen by anyone and trying to manage this on my own.
I tried the PD UK Forum, but got some knockbacks and negative comments, then I found Health Unlocked site, which seems to have a more positive outlook towards those trying alternative therapies. Hence, I am doing that thing that blokes don’t normally do – opening up and reaching out – in the hope of receiving some help and advice please.
At present my symptoms are: Right side stiffness, especially arm affecting motor control, writing, mousing, washing, everyday tasks etc. This has been compensated mostly by use of the left arm/hand. However I now feel that the left side may be deteriorating. I have a ‘mask face’; a definite musky smell and greasiness to skin with onset of small flaky patches (eczema?); slowness of movement; slight tremor when put under pressure e.g. putting key into lock with people queuing up behind me; periodic cramping of foot, calf and shin; slight difficulty swallowing at times; night time drooling; difficulty turning over in bed and trouble sleeping etc.
I still maintain a sense of smell; retain my ability to walk quickly; have good balance and have no issues with constipation, often going twice a day – I just eat a standard but sensible balanced diet.
I should also state I still work in a stressful job and I’ve not told anyone about my condition, though some people are starting to notice things.
Over the past 10 years I have experienced considerable lower back pain culminating in a microdiscectomy; various family deaths (many Cancer related); Family breakup issues and workplace bullying. The latest issue I am trying to cope with is a Mother who has increasing dementia. I think that it is fair to say that worry and stress have very much played/are still playing a part.
Over the last few weeks my symptoms seem to have worsened and have really dragged me down, resulting in higher levels of anxiety and worry. It has made me feel like there is little point in continuing this miserable existence, where everyday things get a little worse.
Not wanting to give up I decided to look again at the internet and came across Health Unlocked and the PWP community sharing ideas like, mannitol, thiamine, serine and mucuna treatments etc.
Basically I am now at the point where I need to try something and preferably something that others have experienced some success with.
I look forward to hearing back from the community and would like to thank in advance anyone who takes time out to post suggestions.