Amantadine..... can I take it only when needed??

[Chicafromchitown]

I take 1 25/100 c/l 3x/day with 1 mirapex, but lately I was having too much dyskinesia neuro gave amantadine, but never started it, usually I only have 2hrs before meds wear off, so I have to rush to do what I have to do like grocery shopping and there goes my 2hrs On a day when I was gonna need extra on time, I experimented by taking 1/2 of c/l with 1 amantadine and 1 mirapex to my surprise I couldn’t believe how much energy I had. I was surprised 😮 that I went to three stores!! plus I didn’t take c/l till a few hours later!! Was it a lucky day for me or amantadine worked well with only 1/2 of c/l? So I was wondering if one can take amantadine only as need it, or once you started than that’s it? The reason I don’t want to take it continually is because I’m already on one DA (mirapex) but I’m planning to cut back on that one. Any suggestions??

[ion_ion]

I'm taking 3x100/25 c/l per day starting four months ago. Last week I started 1x100 amantadine per day to stop the tremor but with no effect. I was dx two years ago and started HDT one year ago. Can you get diskinesia with such a low dose of c/l? My neuro wanted to put me on 6 c/l's a day and the only symptom I have is the RH tremor.

[Hidden in reply to ion_ion]

Many years ago I tried amantadine and I tried benadryl per my Neuro suggestion. No good.

[Chicafromchitown in reply to Hidden]

Royprop

For what purpose did your neuro suggested amantadine and Benadryl?

[Hidden in reply to Chicafromchitown]

Control tremor

[Chicafromchitown in reply to ion_ion]

ion_ion

My neurologist also put me on 6 c/l I only took the 6 for two months,it was too much After each dose I was getting dizziness and I couldn’t stand still I would bounce side to side, little by little I went down to three tabs/day and now I just started with 1/2 c/l 1 mirapex and 1 amantadine plus 500mg of b1 hdt. Thank you 😊

[JRltd]

I was dx in 2013. I am on c/l 25/100, 1.5 pills 4x day...6,9,12,3 and at 6 I take 1 std release & 1 controlled release. Amantadine 100 4x day ...6,9,12&3

15mg Melatonin for sleep.

Mirapex caused me head tremors @ night.

This is the best combination I have had. Good luck!

[Chicafromchitown in reply to JRltd]

Thank you for sharing 😊

[ion_ion in reply to JRltd]

4x100mg amantadine per day? It did helped with the tremor? What about side effects? Usually amantadine should not exceed 3x /day according to some doctors to avoid hallucinations.

Thank you.

[JRltd in reply to ion_ion]

Yes. It works well. Tremors are almost non-existent. No hallucinations but take my last dose at 3pm. Ive been on this regimen now for about 3 mos. The only side effect I have is dry mouth and I just drink more water and/or suck on a lifesaver or a butterscotch hard candy once in a while when dry. It is the best Ive felt. I was dx 7/2013 and been on C/L since 9/2013. Best of luck to you. J

[ion_ion in reply to JRltd]

How much c/l and amantadine are you taking per day?

Thank you.

[Hidden]

No way to know unless you have a good week of experience. Amantadine worked great for my tremors but unfortunately affected my speech. I stopped it. My speech is now normal.

[Chicafromchitown in reply to Hidden]

Malayappan

For how long did you take it, before you realized that it was affecting your speech? And how so? You lost your voice?

Thanks 😀

[Hidden in reply to Chicafromchitown]

About 6 months. My speech was slurring and I could not say multisyllabic words. I take meds for diabetes and through a process of elimination, we narrowed down the suspect.

[Chicafromchitown in reply to Hidden]

I am sorry😞 that you had to go through that bad experience.

Thanks for sharing 🙏🏽

[ion_ion in reply to Hidden]

How many 100 mg pills per day? Did they fully eliminate the tremors? if yes how long did take to see results ?

[Hidden in reply to ion_ion]

3 100mg pills per day. Yes, it did eliminate all of my tremors, but had a devastating effect on my speech. Results in a couple of weeks. Unfortunate that the side effects were so severe. But not everyone suffers from it. Usually, most people suffer from documented effects on their legs.

[aliciamq]

I understood amantadine works to diminish the side effects of c/l and not on it's own - I'll need to look again.

[Chicafromchitown in reply to aliciamq]

Thank you 🙏🏽

[akgirlsrock]

Amantadine didn't work for me and made my mouth so dry , I stopped using it. Try entacopone it helped my Dyskinesia 100% and I Lowered my sinemet dose on my own to 1 and half instead of 2 every 4 hours. Dyskinesia is a side effect of to much sinemet in our blood stream.

[Chicafromchitown in reply to akgirlsrock]

Is entacapone to help with dyskinesia?

[akgirlsrock]

Yes, it smooths your levodopa out keeps it steady, I was having Dyskinesia really bad, I was going to the hospital the swaying was bad. It helped me 100%

[JohnPepper]

Hi Chicafromchitown. I have responded to yo before but am not aware of you following up on my suggestions.

Let me repeat what I have said. Dyskinesia is caused by TOO MUCH LEVOLDOPA IN THE BRAIN. You are in a bad place, and I feel very sorry for you. If you want to get out of that situation you need to cut down on your medication and start doing exercise, specifically 'FAST WALKING' .

You will probably tell me to stop talking nonsense. How can you start doing fast walking if you can't move?

I have not been in you situation because I did not go the medication route I went the exercise route.

How does anyone get out of the medication route? That is very difficult. When you accept that medication was not designed to stop the progression of Pd, then you will realize that whether you take medication or not, your Pd is continuing to get worse!

If you were to come off the medication, even if you do it slowly, you will be able to reverse your situation.

Look at my website -reverseparkinsons.net and contact me. I will try to help you and it won't cost you anything!

[Chicafromchitown in reply to JohnPepper]

Johnnpepper

I’ve already reduced my c/l dosage from 1tab to 1/2 3xday and started walking 🚶‍♀️ on my treadmill not fast but I will increase speed little by little, and hopefully I will stop the c/l thank you for your interest. Have a great weekend 😄

[JohnPepper in reply to Chicafromchitown]

Hi Chicafromchitown. I am happy to hear of your progress. Are you aware of what GDNF is and how think our brains produce more of this WONDER PROTEIN? If you don't then you might find it will encourage you to go faster and further!

[Chicafromchitown in reply to JohnPepper]

I don’t know 🤔 what does it mean?

[JohnPepper in reply to Chicafromchitown]

Hi Chicafromchitown. It means "Glial Derived Neurotrophic Factor". Glial cells are the cell that have been damaged or destroyed by Pd. Neurotrophic means 'Nerve Repair or Replacement". That means to us patients that our brains produce our own REPAIR KIT for Pd, but nobody tells us this!

Scientists gave this protein that name because that is what it really does. It must have been named many years ago, So the medical profession has know this since whenever that was. Why don't they tell us when we are diagnosed that if we can produce more GDNF in our brain we can get better!

I think that fast walking does that for me because it is the only thing I do differently to what I did before diagnosis.

Why don't you make contact with me and learn all about it, at NO COST?