On period for Parkinson's with alternativ... - Cure Parkinson's

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On period for Parkinson's with alternative medicine

Kayyyyuz profile image
18 Replies

Hi

I'm here to learn from anybody approaching Parkinson's treatment differently! I hate Western medicine not minding how my neurologist feel about it! I prefer alternative medicine and currently on Zandopa with green tea which gives me 3 hours on time! Recently I started adding sinemet CR to the Mucuna and although my Nurse says it doesn't work I get 6 hours on period with the combination and with less dyskenisia when wearing off!

Please is anyone using herb combination to stay on for long? Kindly share ideas with me and I'll be grateful!

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Kayyyyuz profile image
Kayyyyuz
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18 Replies

High dose thiamine hcl

Kayyyyuz profile image
Kayyyyuz in reply to

Thanks I'll read up

in reply to Kayyyyuz

join my facebook group:

"parkinson's thiamine hcl"

facebook.com/groups/2322600...

Parkinson's Relief, Questions and Answers

Guide:

1. Read page, About, open links.,

2. On Files page, open B1 FAQ document.

3. On Files page, download First Appointment document, answer and submit.

Kayyyyuz profile image
Kayyyyuz in reply to

Hi

Which is better? Benfotiamine or thiamine HCl.

What is the best dosage and time to take?

Thanks

in reply to Kayyyyuz

The following link will take you to a page that should answer most of your B-1 / HDT questions if not all of them. Please bookmark it in some way or you can find it again by clicking on my icon.

healthunlocked.com/parkinso...

Good reading and good luck!

Art

Kayyyyuz profile image
Kayyyyuz in reply to

Thanks I'll check

in reply to Kayyyyuz

Thiamine HCL

Therapeutic 4 grams daily.

Morning and lunch time.

Kayyyyuz profile image
Kayyyyuz in reply to

Thanks

enjoysalud profile image
enjoysalud

Hi, look up the posts and replies that SILVESTROV did on this site....about 2+ years ago. He did it ALL with alternative supplements and not the brand Zandopa but equivalent. His posts always had medical research sited with it and he explained why he chose what he chose.

Good luck!

enjoysalud profile image
enjoysalud in reply to enjoysalud

Just write in SILVESTROV on the search bar above (same line as HELATHUNLOCKED).

Good luck

Noella21 profile image
Noella21

bedtime . It helps him move in b ed at night. without it he gets he cant move to turn over .

Abby1212 profile image
Abby1212

Try taking less cinematic at night adding to your doses during the day! It worked for me as I’ve had a really difficult time sleeping at night

Abby1212 profile image
Abby1212 in reply to Abby1212

Sorry, less. Sinemet

cabbagecottage profile image
cabbagecottage

I found sinemet Cr helped my husband through the night

JohnPepper profile image
JohnPepper

Hi Kayyyyuz. I was diagnosed with Pd in 1992. I was able to come off all Pd medication in 2002 and have lived a normal life since then, I am now 84 years old and till am able to walk 7 kilometres in one hour.

If you look at my website - reverseparkinsons.net and contact me I will help you, free of charge.

Kayyyyuz profile image
Kayyyyuz in reply to JohnPepper

Wow John! 7km in one hour? I'll check your website

Smoothjazz profile image
Smoothjazz

Hi Kayyyyuz, I am a caregiver and my husband has been using Zandopa for three years along with carbidopa/levodopa er and try to drink a green tea every night. It is not perfect but we have been able to sustain. Drugs cause too many side effects like dyskinesia and dystonia (muscle spasm). We went from taking 6 carbidopa/levodopa er to 2 and a half to 3 pills a day but Zandopa is about 1 to 1 1/4 teaspoon every 1 and one half to two hours. How long have you had Parkinson’s and what is your daily schedule? Nice to hear from you. Our neurologist is ok with what we are doing but would like to find an md that is into Ayurveda treatment like Dr. Maldonado that wrote the book “Mucuna vs Parkinson’s”

Kayyyyuz profile image
Kayyyyuz in reply to Smoothjazz

Had my PD5 years ago. Took l/c for 3 months and the side effects made conclude that it's the synthetic medical that kill people.

I later found Zandopa brand of mucuna and that's what I've been using. It's just too good# within few weeks of usage my non motor symptoms improved greatly. I've been on it since then and would only use control release of l/c if I'm at work and need a very long on time.

Thanks

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