musculoskeletal pain

[Cheehong]

I searched the internet and found that most people with Parkinson's have muscle pain. This pain is hard to explain and it happened to me some three years ago. My GP could not diagnosed that I was having Parkinson's and urged me to do a biopsy of my thigh. My thigh muscles are extremely weak and sore whenever I did squat or stand up from a sofa. I tried many painkillers but none could give me relief. Could anyone give me some advice please.

[Enidah]

This happens to me in my shoulders and upper arms when my meds are wearing off. I will not even be able to lift my left arm due to the pain and the only thing I have found that helps is to take my carbidopa levodopa.

[Cheehong in reply to Enidah]

Thank you Enidah,

What bothers me most is that my neck and shoulder pain. Maybe the rigidity and stiffness makes it very unbearable. The pain is always there. I have tried Chinese acupuncture which helped a bit but not long term solution. Maybe the majority of PD sufferers all have this kind of symptoms. How do you people cope? Please help with any advice would be welcome.

[Hidden in reply to Cheehong]

I would give topical magnesium chloride oil (mag oil) a try as a non-invasive measure that may help. I use it on my neck and shoulders for stiffness, headache and tension, it's not a miracle , but it is helpful, inexpensive, easy to use and healthy for you!

Art

[Farooqji in reply to Hidden]

how many times a day do you apply the oil and for long its effect lasts

[Hidden in reply to Farooqji]

It varies by the individual, but the shortest period of relief I have heard is 4 to 5 hours and the longest is most of the day. Also, instead of a second application, sometimes you can get by just wetting your hands with water and then rub that moisture over the previous application of mag oil and it will usually activate the remaining magnesium on the skin and start to give relief in about 5 minutes. By doing this, your mag oil spray will last longer and it will be even cheaper. If it works for whatever purpose you are testing it for, you can order the dry product in bulk and make your own at home very inexpensively and all the while you will be absorbing magnesium through your skin!

Art

[Lookingforhealing in reply to Hidden]

Where do you buy the mag oil?

[Hidden in reply to Lookingforhealing]

You can get mag oil at any well stocked local vitamin supplier or any of the many online supplement suppliers including Amazon.

Here is a fairly inexpensive one at Amazon :

amazon.com/Life-Flo-Magnesi...

I've tried different brands at different prices and they all seem to be about the same in terms of effect.

Art

[Lookingforhealing in reply to Hidden]

Thank you.

[Cheehong in reply to Hidden]

Thank you. I bought a bottle of magnesium oil from a pharmacy. I tried and it did give me some sort of pain relief. Will continue and hope that the effects will last longer.

[Hidden in reply to Cheehong]

Cheehong,

I'm glad that the mag oil is offering you some pain relief already!

It can be useful for many PD related muscle issues and pain in general, strains and sprains, so a handy item to keep in a medicine cabinet. Don't forget that you can reactivate it by just adding a little water to the area that you applied it to originally once the initial pain relieving effect starts to wear off, extending the duration of pain relief for each application. It can help improve your quality of life while being relatively safe and healthy for you overall. If you don't like the feel of it on your skin, you can improve the feel significantly by adding a very small amount of body lotion right over the application area.

Also useful to help alleviate cramps that are so common in PWPs.

If you find the the mag oil useful enough to buy it again, you can order the dry flake version to make your own at home very inexpensively compared to the bottle that you bought. If you do decide to make your own, save the bottle that you bought once it is empty since it is already labeled as mag oil. You can just refill that bottle with your home made batches of mag oil!

Art

[Cheehong in reply to Hidden]

Could you teach me how to make my own mag oil. Shall I just buy magnesium flakes from vitamin suppliers and dissolve in oil? Also what kind of oil shall I use ,? Would olive oil be OK?

[Hidden in reply to Cheehong]

Okay, so I guess this means that the mag oil is working well enough for your muscle pain that you would like to keep using it, that's good!

It is very easy to make your own and it comes out much cheaper than the store bought bottles. I will explain exactly how I make it for myself when I make it. First I order a bag like this from Amazon or any supplier who has a decent price on it :

amazon.com/Ancient-Minerals...

This bag will likely last you for years!

I take an empty one quart jar like a mason jar or old spaghetti sauce jar or similar as long as it is close to one quart or one liter capacity or more. I take a rounded measuring cup of the flakes so that the measuring cup can not hold any more flakes and dump it into the one quart container. Now I take the empty measuring cup and fill it to the one cup mark with distilled water which can be purchased at most US markets for around a dollar per gallon container of distilled water. Pour this cup of distilled water into the one quart jar that has the magnesium chloride flakes in it. Put the lid on the jar and shake vigorously for about a minute. Once the flakes have dissolved, the water will look cloudy. After shaking, let the jar sit for about an hour and then shake vigorously again. The mix should now look fairly clear and is ready to use. Use this half full jar to refill your original spray bottle that you bought recently. You are done!

If you would like the mix to be a little less oily and for it to dry faster, use inexpensive vodka in place of the distilled water, but of course this makes the mix a little more expensive, but a little nicer to use. You can also add essential oils if you would like a little scent to your spray. Eucalyptus essential oil will likely add a little to the pain relieving effect. Adding peppermint essential oil and the eucalyptus oil will likely add a bit more to the pain relieving effect, but these two additions will also tend to make you smell sort of like Vicks, so those two essential oils will not be for everyone. Lavender essential oil is said to have pain relieving and antiinflammatory qualities.

Art

[Cheehong in reply to Hidden]

Thank you a lot for the information. God bless you!

[Iloi]

A year ago I suffered from pain all over my body. This happend always when I got off, often at 4 am in bed.

On march 19, 2018 I had my Deep Brain Stimulation Surgery. And ... all pain away.

[etterus]

It’s possible a consequence of abnormal muscle tone or central (thalamus) pain. If you’re in a environment that has cannabis products, you could try CBD oils.

[superdecooper]

hi there,

i know first hand the pain you are referring to, espeically since it may have led me to an unnecessary rotator cuff repair surgery. I was taking narcotic pain relievers for my shoulder and back pain, but also pain in my hand. They stopped working. I then tried baclofen, which works some. it's a muscle relaxer. But it wasnt until i started taking Carbidopa/levadopa that the pain got under control. I also get regular massages and do a lot of exercise, drink water and walk alot. but it's still a struggle that i fight daily.

[Astra7]

I understand that PD muscles use a lot more oxygen than normal ones, so they get fatigued more quickly. By the evening my arms feel as if I’ve lifted weights in the gym for an hour. Other than l dopa I have no idea how to fix this, though I try deep breathing and stretching which momentarily distracts me!

[Goldencbc]

I have had terrible leg pain in my left leg. Drs thought it was due to spinal problems but 2 epidural injections did nothing. I get physical therapy once a week which helps and when I started levodopa the pain improved so much that walking was better. I still have it and heat and massage can help. I also started taking magnesium.