Family and friends,
Just like a butterfly could never explain to a Caterpillar
what its like to go from an ugly worm to a flying beauty , you can't comprehend having Parkinson's until you have experience A body that betrays you.
Until you no longer can control your destiny, until you're the person that walks down the street and everybody stares, looking at you like "that poor son of a bitch, " until you experience the depression, the pain and the fear of the future, you will not get it.
I don't need you to try to make it all better.
I don't need Toughlove.
I don't need to be told about some new yogurt that will cure it.
All I want is you to listen and validate my feelings.
I know I'm very blessed with my friends and family but when you are constantly trying to fix my Parkinson's it makes me feel like you're not hearing or understanding me.
I want you to comprehend that this is a progressive disease and you cannot cure it with a vitamin or yogurt.
Toughlove is great but sometimes you just need a hug, maybe just somebody to sit and listen and just say nothing.
I know their hearts are in the right places and they don't want to except my Parkinson's anymore than I want to .
I know they're trying to give me Toughlove when they say things like "oh yeah ,pull out the Parkinson's card " implying I'm feeling sorry for myself when I am just being realistic.
If There was some supplement. Diet , Faith healer, that could cure me ,wouldn't Michael J Fox have used it by now?
I don't need you to try to fix me or make me feel better I just need you to hear me and and love me.
That being said I know that they don't understand, can't understand, that it's coming from a place of love, because no one understands until they're in your shoes.