Sex and PD

[Sleeplessparki]

I don’t see a lot of discussion on this site with regards to sex and PD. I still have a very strong sex drive which is heightened by the use of ropinerole. But all the medication cause ED. I try and overcome this by using viagara which helps a lot. However, the inability to roll over in bed has made for a difficult situation. Anyone on this site experiencing similar issues?

[Serenity_finaly-1]

Have you tried being on the bottom.???... just kidding

[Sleeplessparki in reply to Serenity_finaly-1]

That position works best but it’s getting old. Thanks for the input.

[Sleeplessparki]

Serenity thanks for turning this post into a joke which it wasn’t intended to be.... just looking for some intelligent conversation.

[Serenity_finaly-1 in reply to Sleeplessparki]

This is not a joke but it helps to break the ice when you are discussing sex. It is a serious problem, one I suffer with so bare with me. Laughing about sex is always easier than telling everyone the issues YOU are having. I will delete the reply, I knew it would offend but not the one asking the question.

[Hollandaise]

I think you are right, it is not easy to talk about sex and still it s something that (most) everybody needs. You are a man and I am a woman, so I cant feel what you feel.

But yes, I have issues too. When we go to bed I am so stiff I can hardly move, that isn' t very helpfull. When i want to caress my husband, my movements are like if I am hitting him, instead of caressing with tender love.

And allways tired, allways in pain, that does no good to your sex life. I am lucky with my husband, because we have a very big love for each other and we allways figure it out to make it work. But I can understand that its different for other people.

[Sleeplessparki in reply to Hollandaise]

Thanks Hollandaise for your comment. I’m not sure how PD effects a women’s sexual desire but for men the drugs adversely effects the ability to have an erection which results in having to take more drugs (viagara) which in my case leaves me with a pounding headache. Vicious cycle.

Your comment on the strong love you share with your husband will allow you to overcome anything. Best wishes

[Quipu in reply to Sleeplessparki]

Hi, Cialis works for me with no side effects.

[Serenity_finaly-1]

I had a talk with a woman who works at my dispensary. She is needing some companion ship. Her friend (she would like it to turn romantic) has Parkinson's. I think she has talked him into cohabiting together... " to save money " . He wanted a two bedroom apartment but she did not understand why he was not gun ho on sharing the same bed room. I asked if she was fond of being punched and kicked and screamed at while she was sleeping. She did not know how violent we can be while we are sleeping.

She is concerned that he seems distant. I told her that this issue will probably get worse not better.

He works but is trying to get disability right now so he spends his week ends medicating with cannabis and watching TV and I said that this is probably his way of coping with Parkinson's.

I really tried to talk her out of it because she has no idea what she is in for.

[Serenity_finaly-1]

Another story. A friend of mine called me up one day and wanted a little consolation because his girlfriend just broke up with him. It would seem that in his dream he was fighting someone. He awakened to screams, her screams. The evil that he was fighting in his dream was in fact her leg. She ran out of his apartment and never came back. Here was the part that got me, he said " it was probably for the best because he did not want somebody that was that selfish." I replied that I did not want to offend him but I would do the same thing if I were her. these are a few of the problems associated with the bond that comes from having sex outside a committed marriage. I took my vows very seriously and so did my wife but yes there will never be the intimacy we once shared.

[Hidden]

Night time is horrible as there is no meds’ and movement is very difficult let alone movement required for having sex. There is a on line publication called Parkinson Life which is addressing the issue of continuing an active sex life with Parkinson Disease.

I have had PD for nine years and my husband loves me very much, however, needless to say I am not a morning person, but I love my husband too and intimate contact is like breathing. I make sure that when I am ‘on’ that I spend as a priority some of that time with my husband, as it is all too easy to spend this time/energy doing all the other type exercise to slow down the disease. I do appreciate that in our early sixties we have more freedom around planning our days.

Thank you for raising such an important aspect of all our lives.

[Sleeplessparki in reply to Hidden]

Thanks Lovepug for the input. Morning is the worst for me as well. as you said I try and plan our sex when I’m in an “on state unfortunately the spontaneity is compromised when trying to plan. But we try and make the best of It.

[grower]

we solve some of those problems by having afternoon sex. And invite half a viagra along for the ride

[grower in reply to grower]

I find it most important as part of my happiness

[Sleeplessparki in reply to grower]

Grower, thank god for viagara. Not sure what it costs you but I found a pharmacy that makes a generic form 30 (100mg) lozenges that you desolve under your tongue for $80. I only take half so it last awhile. I can get you the pharmacy name if your interested. Message me

[grower in reply to Sleeplessparki]

I live in NZ so not likely to be helpful but thanks. And yes I only use half too.

[Taranto98]

I have PD in the early stages ( 2nd year) and ED from an enlarged prostrate. I’ve used Levitra for years with good results. ( Buy from an online Canadian pharmacy for a fraction of the USA price. But now the added stress of PD and my mind games make it unlikely for junior to rise to the occasion . However my wife has gotten creative in ways to get and give mutual pleasure. Simply put the there are more ways for intimacy and release than penetration. Sorry if I am too graphic but Striving to keep a normal or almost normal sex life for as long as possible is my objective.

[Sleeplessparki in reply to Taranto98]

Taranto thanks for the input. PD causes you to get creative and that’s a good thing ! My wife is 7 years younger than me and I have all I can do to keep up with her. Like 3x per week sometimes more!! If it wasn’t for sex I would probably be in a wheel chair by now. Thanks again for your candid reply.

[cjsg in reply to Taranto98]

My husband and I have not had penetration for years (close to ten) but we have fun, toys, romantic somewhat sexual movies, different times of the day add a touch of excitement because we are doing something we normally don't do (kids, jobs get in the way during the day) we call it our afternoon delight. There are more ways to make love/or just plain have sex than penetration. Spontaneity may go but it goes some when a couple have to wait for a pill to take effect. Been there done that. Intimacy is a lot more than penetration.

[JDrunner]

Hello and I can tell you the ropinirole hasn't`t done well for me and caused similar issues also causing impulsiveness . worries of infidelity and outbursts DR just switched me to sine met Can anybody tell me the length of time to wein off ropinerole

[Serenity_finaly-1]

Ok sleepless I will throw you a bone. Who has the problem of they can go and go and go but not go if you catch my drift.

[Sleeplessparki in reply to Serenity_finaly-1]

I would know.....I don’t have that problem

[Sleeplessparki in reply to Serenity_finaly-1]

Wouldn’t

[Serenity_finaly-1]

It is extremely common with sertraline.