1st time user. This website was recommended to us. We don't know anyone with Parkinson's to get up to speed on this issue. Bought 3 books on Parkinson's, so we have a basic overview of a possible diagnosis. We have an appt. with Neurologist for a basic exam and a possible diagnosis (symptoms & treatment, etc.) in July. We are trying to educate ourselves on Parkinson's.
BSM-TCMoore family: 1st time user. This... - Cure Parkinson's
BSM-TCMoore family
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Hi and welcome. You have come to what I think you'll find a helpful place to gain info, and also to realize that you're not in this alone....
Two books that helped me greatly were "Brainstorms " by Jon palfreman. He's a science reporter who was diagnosed w/PD and put his skills to work in exploring the challenges of PD and of finding better therapies. Lays a solid groundwork for understanding the research going on.
The other book is "Every Victory Counts" which the Davis Phinney Foundatiin will send for free. It emphasizes taking care of yourself and is big on exercise .
Where do you live?
No need to rush. Wait for Neurologists diagnoses. Don't panic. It is not the end of the world. relax.
It may sound a bit whacky but when i was diagnosed with Parkinson's I have to confess I was relieved. I thought I had a brain tumor. Someone else has suggested you cool your jets until you see your neurologist. To the extent that is possible, that's good advice.
Is your neurologist a movement disorder specialist? I'm in the US and this site helped me make sure my neurologist knew what was going on: partnersinparkinsons.org/fi...
Read Old Age, a beginner's.guide.
Two other books: the peripatetic pursuit of parkinson disease, free download from the Parkinson's Creative Collective parkinsonscreativecollectiv...
and the book I wrote: If I Can Climb Mt. Kilimanjaro, Why Can't I Brush My Teeth? Courage, Tenacity and Love Meet Parkinson's Disease.
Also, high intensity exercise is your best friend.
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