If you live in an area of changeable weather, does it effect how you feel or how the symptoms of PD increase or decrease, if on Sinemet do you feel cold even when the weather is not, when coming up for another dose?
If effected how do you deal with what is happening?
yes to all
I take vitamin d-3 to make up if there is no sunlight. I keep moving when it gets time for another dose.
We normally have too much sun, but for the past week the weather has been awful, rain, floods, dark and grey sky's, John has started to slow down markedly over the last few days, its not particularly cold, but he is, I feel like I am in a sauna.
I notice that you take what appears to be a huge cocktail of different drugs, what is your time scale for taking them and how do you balance the amount, I presume you have checked for any contra-indications as you seem well ahead of the game.
i take 1 50/200 ext release carbidopa levodopa and 1 25/100 carbidopa levodopa instant release every 4 hours 24 hours day and 1 6mg requip 24 hour release in the morning. i take i multi vitamin , 2 fish oil and 1 5000 iu of d-3 in the morning.
I should have asked if this was prescribed by a general practitioner or a neuro, or did you come to the decision by trial and error, sorry to be so nosy but you always sound so in control of your situation.
Trail and error and a Neuro at a research hospital. Most of the time i am in control but it took 9 long years to get it close and still have some problems. It is my current Neuro that made it happen he is the one who put me on my first carbidopa levodopa . Before then i relied on my Neuro to make all the decisions about my meds and i followed blindly. My current dose amount was a joint decision between him and i. The only thing he seems to worry about is if i have any hallucinations i think that is a very bad red flag. He is a very open minded guy. He has to be to do research. The decision to stop azilect was mine. It was causing my depression at night. I told he why i did and it did not bother him at all. I have a lot of extra meds and i also dose at times when i feel i will need more. Before i go to work out i take a 25/100 just to make sure i am on for the entire work out.
As for being n control i have no choice if i want to live a semi normal life.
Sorry for the long reply just a cloudy cold day here in Texas and i have nothing else to do.
Now for something funny.
I went to the hardware store the other day and at checkout i started talking to a young couple about Crossfit (i had a crossfit shirt on). They asked how i liked it and off i went and told them what i did and how much i could lift. The next thing i know i have 25 year old girl on my back and i am doing back squats. I must say it made my day and every one in the store had a good laugh. I love telling people about my battle with PD.
Thanks for listening,
Bailey
Bailey, you must have drawn a crowd! I'm sure impressed. I not only couldn't carry a 25-year-old girl, I can't even carry my 25-pound dog.
Is it unethical to ask tbe name of your neuro?
I definitely believe my symptoms are worse on bad weather days. I don't do anything different other than complain more.
Touché
I doubt any place has more change in weather than here. Seasonally the temperature can get up to 100 Deg F. + and down to minus - 50 F. Any single day can have clear blue sky and an hour later be cloud covered and precipitation. One hour later back to blue sky but now it is very windy for a few hours. A local saying here :If you don't like the weather just wait a couple hours , it will change. I see no difference in my PD associated with the weather but it may be that the changes are too fast for the PD to respond. I get a little down when deprived of sunshine but I can't complain. I have good reason to complain but no one will listen so I don't bother any more.
There is one odd thing. I must dress using much warmer cloths than before. If I start to shiver than the PD immediately kicks in and I shake (a lot) until I give up and go get warm and only then will it stop.
Same here.
It affects my mood for the better when the days are long. I hate having to go out when it is rainy and cold as it is now. My tremor side hurts more. My doc prescribed buproprion (anti-depressant), 300 mg in the winter but 150 mg in the summer.
My husband takes Madopar. Is affected by air pressure, if air pressure is low he has less energy, high air pressure more energy. Looks forward to the winter for that reason. He also suffers from ME, so a double wamie.
He believes low air pressure increases gravity on his back pushing him forward. People without Parkinson's have muscles strong enough to keep them upright, PD sufferers don't.
An hour after taking Madopar he is almost unconscious for at least 2 hours, anyone who didn't know what was happening would think he'd had a stroke.
Do others have similar symptoms with Madopar.
I definitely notice a difference when the weather is about to change. I have more generalized pain, am stiffer and slower and have more trouble with my affected side. I take Azilect, Symmetrel and some supplements.
Any other PD people out there...your major PD symptom is toes curling up on both feet 
What is the Best Supplement to Alleviate Trembling?
Starting Levodopa/Carbidopa today 
