I am very fortunate to have an amazing care team. A trio that includes my Doctor, my Neurologist and a PD specialist nurse. I value them enormously. We have a great relationship, we are on first name terms, send notes and e mail regularly.
I am not just their patient I am a resource. I provide them with information and support. We all learn and improve. I talk to them frankly and candidly, there is nothing I couldn't speak about.
I try to explain how I feel about things so they get to know me better and what's important to me, it all helps. I always end my appointments by asking if there is anything I can do for them, you'd be surprised sometimes there is.
They've seen me laugh and cry and every emotion inbetween. They'd like to fix me but they can't. That must be very hard. To help I tell them they do a good job for me, and not to worry I'm coping.
If I pick up the phone I can see any one of them, the same day, I know, I've done it.
Once I couldn't drive, they sent someone to get me.
When I was really low this year they phoned me every day.
Is this exceptional? Is this what you get?
I believe in investing in any relationship where it's long term and hugely important. This includes my health care. It's so worth it.