report and prognosis

report and prognosis

I fast walk three miles (gentle hills in route) every other day. I have tremor dominant pd. I was dx three years ago. I take no medicines, herbs or dietary supplements... I have the traditional p symptoms with the exception of falling. My gait is somewhat affected by pd. I get around well, with only a hint of shuffling or instability. I recently started using an electric tooth brush. My right arm and hand is weak and my blessed wife has been cutting my meat into bite size portions. I do not know what beneficial effect walking has had but for now, it is my therapy. I am watching for the cure or treatment, especially ultra-sound surgery. Please keep me advised.

P.S. When first using an elect tooth brush, remove the clear protective brush cap. I did not. The elect brush made such a racket while I tried to brush my teeth (yes, I topped the 'brush' with paste) that I asked my wife to look at it. I thought I assembled it wrong. No, my wife did not laugh at me.

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15 Replies

  • RoyProp,

    Few days back I have posted about Ultrasound Therapy at Maryland University of Medicine in USA; Please check latest update on link :

  • Laughing hard

  • Dear Sir, send your email address,

    Can explain possible reply

  • not in my interest

  • HI RoyProp. I appreciate your critical thinking and find your posts to be well informed, on point, and informative. Like you, I have tremor dominant PD (diagnosed last year, after 2 years of slight tremor and curling toes sporadically when I walk). Not on any meds, but do take some supplements (tyrosine, 5-HTP, CoQ10). Have noticed tangible benefits from intense stationary bike workouts every other day and 2-3 mile walks (not fast) with the dog almost every day. Primary benefits appear to be less stiffness, more fluid movement and less toe curling. The tremor is unaffected.

    I would love to know your opinion on alpha synuclein clumping. Do you think it's a cause of, or is it just a side effect of PD? I've read a number of journal articles and am leaning more and more towards viewing it as a causative agent.

    I'm considering starting dopamine agonist therapy too. Your thoughts here would be appreciated also.


  • no opinion: dopa agonist or alpha synuclein clumping

  • be careful with dopamine agonist can have side affects such as gambling and sex addition

    been there done that

    i am now on sinemate

    works well with exercise

    i do crosssfit 4 to 6 times a week

    some days no Pd

    more good days than bad

    nights can be bad

    all and all i do great

    check my post about crossfit

    good luck

    but exercise is key to a good life

  • I choose:

    1. no meds

    2. exercise

    + 3. melatonin to see if a high dose will reduce tremors,;

    "melatonin’s neuroprotective qualities are believed to actually slow the progression of PD"

  • i don't have tremors

    a love your dedication

    exercise is the key

    i can not set very long

    as long as i am active no meds needed so i get up wax and clean my corvette

    mow the yard

    go walking

    go running

    lift weights

    go do crossfit

    chase my wife hope i never catch her don't know what to do if i did

    melatonin is a drug just natural

    it can give you strange dreams

    i know it happened to me

    i took 10 mg one evening made me sleepy all day the next day

    it is a powerful drug

    drugs are drugs man made or natural

    not preaching just out of concern

    take care

    live life to it fullest

    if you are a man of god bless you

  • Couldn't agree more about the beneficial effects of exercise Bailey. If I slack for even a couple of days I can tell a difference.

    I've read your posts about cross fit and have some friends that swear by it too. I'm in reasonably good shape, but cross fit is intimidating. I think I'll check it out, though.

    Thanks for the cautionary advice regarding agonists too.

  • they tailor the work out to you

    that makes it doable for every one

    good luck

  • I'm sorry, I laughed!

  • Roy... One of the first findings that was extremely supportive of exercise as disease modifying was a serendipitous event. An extremely involved pwp went on a tandem bike ride with her husband that forced her to pedal much faster than normal. Upon the end of her ride she signed something and her handwriting was normal... A huge improvement. This has been duplicated with others.

    You may likely benefit your hand deficits by riding a stationary bike for 80-90 rpms. This is quite fast so work up to it slowly.

  • exercise exercise exercise exercise exercise exercise exercise and exercise some more

    you will improve

  • Tiptop, your PD history and mine are similar.. DX'd in '13 at 73: no meds, fast walk daily, plus other exercises... Some progressing.

    Tremor dominant

    I follow your informative posts

    Keep it up!

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