Pain in Parkinson's

I have been diagnosed with Parkinsons for 5 years. I also have disc degenerative disease and a posture condition due to the Parkinsons which causes my head to lean forward and to the side. I have been in Physical therapy for almost a year trying to hold my head up straight. My question is; does anyone else have widespread pain, especially when getting up and in the evening. I work full-time and work 12 hour shifts so exercise time is limited. I take Tramadol for pain and also I am on Lyrica, Ropinirole ER, Rytary currently , clonazepam for sleep and Cymbalta. My major symptom is a tremor, which gets worse with anxiety or when I am tired. I can handle the Parkinsons, but just cannnot get ahead of this pain!

I am new to this site and I enjoy the give and take. I am thankful for any and all ideas as to how to cope with this pain or how to decrease it. Thanks!

12 Replies

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  • Hi, sorry your in pain. Pain is a real pain. I too have disc degenerative issues , etc and until I decide to get surgery one day. I use Aleeve or Advil and rub on Bio Freeze , an icy hot like product , and it helps me get through the day. I was told acupuncture helps with pain. That's next on my list of things to try . I'll keep you posted. Good luck , hope you find some relief. 😊

    Regards,

    Anna

  • Thank you Anna for your post. I do use Ibuprofen and sometimes it seems to help as much as anything. You would like acupuncture. I have done that prior to health issues and I felt great. My insurance doesn't cover it and it became too expensive for me. I will have to try the Bio Freeze. Thanks for your well wishes. Same to you!

    Thanks,

    Nancy

  • Hi - I am sorry you are in so much pain. Try LDN (low dose naltrexone) and massage therapy (Bowen massage) if you can find one.

  • Massage therapy is a great idea but not covered under my insurance. Not able to afford it right now. I will look into the naltrexone. I haven't heard of that. Thanks for your concern Etheline!

    Nancy

  • Sounds like u r on a lot of meds! My husband is stage 4 PD and just began Rytary which seems to be working well with less breakthroughs. Anxiety is a real prob and will negate any drug, allowing a breakthrough. We use taurine, tryptophan, carnitine, carnosine, theanine - all amino acids which are calming. Also GABA and magnesium theonate and calcium/magnesium.

  • Thanks so much for your post! All the medications that I am on were prescribed by my neurologist. You are right about anxiety, but right now, I have to work to pay the bills. Unfortunately, I am single and can't afford to retire or try and get disability. The amino acids, were they prescribed by a physician and are they expensive?

    Thank-you

    Nancy

  • Re the posture: we use a chiropractor regularly(caution: that counts as 'rehab' under insurance). Also Spinemed which is covered if the prescription is written for traction. It also is counted as rehab so none of these rehab places recommend anything else besides what they do...you would be using up your rehab allowance somewhere else.

  • I was thinking of seeing a chiropractor. Thanks for the advice about how it is billed. I am currently in physical therapy and I am going to wait until I have been discharged from PT to see how many visits I have left. I am not familiar with Spinemed. Has this helped your pain?

    Nancy

  • It sounds like what is called wry neck or torticollis. Also check out cervical dystonia. All very painful, I know you have to keep working, I am amazed at your stamina. I hope you find some relief soon.

    Here are ideas from another forum.

    healthunlocked.com/blf/post...

  • I have been diagnosed with cervical dystonia, but other than Parkinson's meds and physical therapy, I am at a loss. Thanks for your post!

  • As well as asking here you may find dystonia organisations helpful.

    dystonia-foundation.org

  • Also I know of people who have DBS for cervical dystopia with good results.

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