Iam a mother of two, married for 50 years & had a happy & healthy life.
5 years ago my only sibling, my brother who we were caring for passed away.
Shock of his death started a tremor in my right arm. Six months later I went to see a neurologist who put me on 6 x 12.5Mg of Dopamine per day.
Since then my condition started to go down. Loss of balance, difficulty in standing & sitting dow, speaking not clearly, staring look, not smiling, not laughing etc.
I am told my condition is degenerating. I am keeping up with Dopamine which I want to stop because this I think is the main cause of my current helplessness.
Will be discussing it soon with my neurologist.
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parkinso
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If you are still on the same protocol (12.5/50 c/l or madopar?) for 5 years you may be under medicated rather than the meds causing your symptoms. Discuss lowering and/or raising your meds with your doctor.
You might want to join our Zoom calls. Saturdays at 7 PM CST and Sundays at 11 AM CST. Just reach out to MBAnderson to get added. Lots of nice people on the call.
There is no medication available that reverses the progression of Pd. That being the case, it would be better for you if you looked at other known ways of reversing the progression of Pd, so that instead of slowly getting worse, even if you do get temporary relief for shorter and shorter periods with medication, with the walking you are slowly getting better.
One of the proven ways to reverse your symptoms is to start doing Fast Walking. You would start at a very low level of walking, as fast as you can, for as little as 10 minutes or less, every second day and slowly working up to 1 hour every second day. That gives your muscles a chance to recover.
I did that back in 1994 and by 1998, at the age of 64, I was walking at less than 7 minutes per K and most of my more serious symptoms were a thing of the past.
I was not cured but I have not taken any Pd medication since 2002. I am now 87 and still walking. This method of high intensity exercise that is maintained for an hour has been scientifically proven to produce a molecule in your brain that repairs or replaces the damaged brain cells, which then gives you more levodopa and therefore, less symptoms.
For more information either Google John Pepper, Parkinson’s or look at my profile on this website.
"There is no medication available that reverses the progression of Pd...." Even if that's true it does me no good to believe it. I've tried everything from B vitamins to meditation with nothing making a difference. I can't tell whether fast walking is doing anything. So next I'll try red light therapy. The literature suggests it could help. IF it doesn't,,..maybe look into stem cells. All these gimmicks may be a fools errand but that's preferable to feeling hopeless.
John you are blessed that it works for you. Everyone is different, if this was a "cure" it would work for everyone. Its good to spread your success, as I said before some people simply can not fast walk because of other health problems. Count your blessings!
Hi. I have never been under the impression that Fast walking works for everybody, but if it works for only 25% of them, which I believe it possibly could then that is a large number of patients.
Je suis tellement touchée qu’après votre amélioration de votre santé, vous restez disponible pour aider les autres.... Merci beaucoup, Monsieur Pepper. J’aimerais tellement que mon mari ait essayé votre méthode... après combien de temps est-il possible de remarquer de petites améliorations? Y a-t-il beaucoup de gens qui, comme vous, ont eu des améliorations significatives après avoir fait de la marche rapide? Merci d’avance pour votre réponse
I am so touched that after your improvement in your health you remain available to help others.... thank you very much Mr Pepper. I wish so much that my husband tried your method... after how long is it possible to notice small improvements? Are there many people, who, like yourself, have had significant improvements after doing brisk walking? Thank you in advance for your reply
I noticed an improvement in my clodition within a month. My walking times improved by nearly 20% after only three months. After two years I had broght my time doen to less than 7n minutes per Kilometre, It statrted in excess of 10,5 minutes per K.
I’ve had two right knee surgeries. I also have right leg tremor which tightens the muscles and aggravates the knee. I’ve used many of my own treatments including foam roller cupping vibration and laser. I can now walk further but I don’t know if I could do it for one hour. What do you think about walking and biking since the biking doesn’t aggravate my knee as much
Hi. I am not a doctor! I can only tell everybody what I have done to reverse my symptoms. If you can make use of any of the info I send out then that is wonderful. I cannot possiblly tell anybody that it will work for them! Anybody can try to do whatever they can and see the results. It requires no capital outlay or consultation costs, so what has anybody got to lose?
Regardless of your other problems, you have the need to keep as fit as you possibly can. Your Pd symptoms need to be dealt with. I cannot tell you what you must do about your other terrible problems but, I am sure that if you improve your bodily health you might even be helping the other problems.
So, regardless of how far you are able to walk, at the beginning, please continue to do it. If you can only manage five minutes of fast walking then, that is fine. Keep doing that every second day for the next two weeks. On the first day of the next two weeks, see how long you can fast walk You will probably find you are able to walk for six or seven minutes. Then walk for that new time for the next two weeks. On the first day of the third week, see how n=much further you can walk. It might take you a year to reach one hour, or even longer, but you will be feeling a lot fitter and maybe, just maybe, your Pd will have improved. It will only improve if you manage to walk as fast as you possibly can. Just walking is also good for you, but if you don't push yourself to walk as fast as possible it will not help to slow the progression of the PD!
Hi. Very welcome to the forum. It must have been heart breaking losing your sibling. Many of us get the parkinsons triggered by acute or chronic stress. For what you say you take 6 x 12.5 madopar a day after 5 years. To me it sounds that you maybe undermedicated. Its very important that your neurologist review your symptoms and frequency of your medication. Having said that Madopar helps only with symptoms. There are other supplements activities and devices that help with progression and quality of life. Many of these are never mentioned by neurologists. I can suggest a few if you are able for them.1. Use music to help you moving...first around the house, then if you do walk use it to help you walk. Walk as much as an hr every other day as consciously and fas as you can. I started with 10 min. Increase slowly. Read John Pepper.
Vitamin b1 hcl high dose protocol. Read Vtamin b1 therapy by Daphne Bryand. The protocol is somewhere linked in the forum but like yourself im a bit challenged with technology. Other members will help.
Chi kung and tai chi are awesome for balance and many other symptoms. I refer you to Park_Bear. He is wise and compassionate and have some links to take you to the right places.
If you find difficulty sleeping Melatonin is your friend.
Many of our members have great info and knowledge on cinnamon for instance, licorice and many other supplements. Many of us use diet to feel better. I use the mediterranean diet minus meat and dairy but there are many ways to adjust. Go easy on yourself, stick around and dont be afraid to ask questions. Warmest welcome.
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Good neurologist for PD
Parkinsons? Or not? 
My first post in Parkinson group! Neurologist suspects I do have Parkinson/Dystonia, would appreciate any input greatly ! 
Edited: PD increases chance of RLS.(yes) Azilect worsens RLS.(wrong) Ambroxol, being an antihistamine I believe worsens RLS.(incorrect)
Rethinking Parkinson’s Disease: could dopamine reduction therapy have clinical utility. (The article)
