High levels of iron : There is a thought... - Cure Parkinson's

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High levels of iron

Coblrman profile image
23 Replies

There is a thought that high levels of iron are a underlieing cause of PD. Men have much higher levels of iron than women (and higher rate of PD) except women who had hysterectomies reached the same high level as men much earlier than other women.

How many women with PD had hysterectomies on this board?

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Coblrman profile image
Coblrman
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23 Replies
margie profile image
margie

I had a hysterectomy at age 30. Tremors began at age 38, correct diagnosis age 55.

fishinggirl profile image
fishinggirl in reply to margie

Hi, I had a hysterectomy age 28. I am also a carrier for hemochromitis. Not spelled right but means makes too much iron. My iron level needs to be checked, haven't been checked in forever.

fishinggirl profile image
fishinggirl in reply to fishinggirl

Forgot- Parkinson's at age 50

DebGood profile image
DebGood in reply to fishinggirl

Same here - hysterectomy at 29, first symptoms at 38 and diagnosis at 43 - I too have hemochromatosis. My Dad had PD and had high iron levels.

fishinggirl profile image
fishinggirl in reply to margie

Hi, I had a hysterectomy age 28. I am also a carrier for hemochromitis. Not spelled right but means makes too much iron. My iron level needs to be checked, haven't been checked in forever.

rosea1946 profile image
rosea1946

I had hysterectomy when I was 40 and diagnosed PD at 67. Had symptoms for few years before final diagnosis

DeanGreen profile image
DeanGreen

My iron levels always been at the high end of the normal range. I grew up in AL (Rust belt). Any evidence that there is a higher prevalence of PD in folks living in the Rust Belt. I'm 55 and was diagnosed 5 yrs ago and my Dad (81 yrs) has PD.

dbean profile image
dbean in reply to DeanGreen

Diagnosed at age 69 had surgery when I was 36 years old

dbean profile image
dbean in reply to DeanGreen

Diagnosed at age 69 had surgery when I was 36 years old

bmakla54 profile image
bmakla54

Had a hysterectomy at age 50….diagnosed with PD 4 years later

Coblrman profile image
Coblrman

Wonder if we have any ladies on this board with PD who didn't have an issue with high iron?

Coblrman profile image
Coblrman

If iron is an underlieing cause it only makes sense to avoid iron in diet and supplements and to use iron chelators if possible. Reversing the damage would require removing the insulting element. I recall an an intern under Profr Youdim (inventor of Azilect) stating Green Tea was a powerful iron chelator. I believe there are several others like Curcumin and quercetin or pomegranate.

See the eighth item in the first link list below regarding green tea.

israel21c.org/health/top-10...

lef.org/magazine/mag2012/ma...

Park4me profile image
Park4me

I had a hysterectomy at age 39. Diagnosed at 56 but symptoms started about 52. I do not have high levels in iron as my blood was recently checked and is in normal range. I have heard that some suspect manganese as being a possible cause which is often found in well water. I have lived in 4 different houses in a mile radius since 1981 all on well water with high mineral content. This current house was the only one that a filter was used. So...

Coblrman profile image
Coblrman

I'm not sure what is considered normal (since men have a much higher level of iron than women and this is considered normal however all men have been warned for some time not to take iron supplements);

Researching making "blood donations" also appears to be a good way to love iron levels longterm. The redcross is concerned about frequent donors reducing iron too much.

Lillee76 profile image
Lillee76

I had a hysterectomy at age 66. I was diagnosed with PD in January 2013 at age 77.

michaela13 profile image
michaela13

I did.

Coblrman profile image
Coblrman

So far we've only had one female who (although she had a hysterectomy) claims her iron was not high though she also came down with PD. I'm not certain what the health profession considers "not high" for a woman versus "not high" for a man.

ancee profile image
ancee in reply to Coblrman

I had a hysterectomy at age 34, was diagnosed with pd at 63. I believe my blood work was all in the normal range, Does there seem to be a pattern here?

Coblrman profile image
Coblrman in reply to ancee

Seems to be but I'm not qualified to say yes or no. Each can take this information for their interpretation.

fishinggirl profile image
fishinggirl

How is everyone doing? My new symptom is excessive sweating, even in air conditioning.

fishinggirl profile image
fishinggirl

How is everyone doing? My new symptom is excessive sweating, even in air conditioning.

Coblrman profile image
Coblrman

I went through that at night. Only thing that helped is turning the AC down.

dmerritt profile image
dmerritt

hysterectomy 8 years ago. dx two years ago

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