Other experiences of coconut oil.

At the time of posting, eight people had responded positively to the straw poll on the experience of taking coconut. It seems that they had few adverse effects and quite a few positive ones. People were asked to respond who had taken the coconut oil for more than one month.

I am interested in hearing from people who perhaps started taking coconut oil but who did not persevere for one reason or another. Was it cost, taste, advice from well meaning onlookers, adverse effects or not the results you hoped for?

All reports are useful in this discussion. No judgement is implied, I am just interested.

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  • I have stopped taking the coconut oil because I cannot buy the capsules in the UK. I just cannot take the stuff from the jar.

  • Try adding it to a smoothie. I make one with frozen fruit, banana and yogurt. It tastes good and you don't notice the CO. I also melted some and stirred it into peanut butter. I let it set till it was solid again and it's fine for crackers, toast or apple slices. :)

  • I will endeavour to try it, but I am lazy in that respect if it makes loads of washing up and mess

  • We give co to my dad -- 5 TBL/day. That's a lot of co. Best and easiest method we've struck upon is applesauce. You can't taste the co at all, it's easy, and it isn't too filling or fatening. Also, if you get unsweetened applesauce you avoid unnecessary sugar.

  • Have you noticed any change in your father's symptoms?

  • Yes this is also another good way to incorporate it into your daily diet. I use coconut oil every day and just feel amazing these days!

  • Hello Peaches. Did coconut oil help any of your symptoms?

  • I have only been using it on a regular basis for a week now so I don't have a good base yet. The only thing so far is that it is a good laxative. I'm hoping for less stiffness and more energy! Dare to dream....right?

  • Well a laxative is not to be sneezed at with Parkinson's I'm sure. :) keep us posted please.

  • So many ways to consume it. Spread on toast, in smoothies, homemade cakes, breads etc. add to your tea, coffee etc.

  • AMAZON HAS CO CAPSULES. HAVE USED COOIL AND LEMONG grass essent oil on my feet and ankels to stop the swelling. use it too whiten my teeth

  • I have been on CO for approximately three months I have had difficulties attemting to adjust to the correct dosage....the results have been favourable.....again I had numerous difficulties in attermpting to find a mixer (strawberry juice or any frozen fruit juice is the best). I found it difficult to find the right dosage....no hellp from the peanut gallery!!! I have found that I must take 4 tablespoons to be effective, wish there would be mokre respondents tio the survey. djr2003ont@yahoko.ca

  • I agree, I'd like to hear all opinions on this post. What does effective mean for you? How does it help you Parkinson's?

  • I tried coconut oil as a liquid and could not tolerate it. I switched to the solid form and it seems to help. I noticed that my sense of smell returned. Also noticed that I gained weight, but not sure if its the coconut oil that is the cause. I do not know the correct dosage and am trying to work that out. I am interested in knowing if anyone else is using the coconut oil in a solid form and the results they are having.

  • How much did you take to get those results?

  • I bought a juicer and a blender for smoothies. Best thing Ive ever bought. Healthy green juices and smoothies, using coconut oil for the added good fats. Also mix it with peanut butter. I've never enjoyed food so much in my life!

  • I stopped because I could not find ways to ingest it. Hard enough to figure out what to eat five times a day with PD meds and also IBS-C. Cook with it but burns easily. Easier in the summer when it is not solid. Also saw NO results after 2 jars of the stuff.

  • I put CO in hot liquids and hot cereals and hot soups. If you stir while eating the CO is almost tasteless. CO has helped my balance and regularity.

  • Thank you. Did you have to change your meds at all during this period, either more or less?

  • No change -- Azilect, Amantadine and Propropanol.

  • I gratefully accept this post as a companion to my "Straw Poll". The guidelines for that post

    healthunlocked.com/parkinso...

    are intended to facilitate tabulation of results, but soup has noted that there is an unintended consequence of possibly restricting discussion. She has provided a solution by initiating this post. Thank you for noting the deficiency and for providing a solution.

  • I am sure in the interests of collecting data that your post was as well designed as could be. Well done for trying to gather the data in the first place.

    I am just pleased that different people are able to comment here so that we cannot be accused of just acting like the Pharma companies and only circulate positive results.

    I think it's a good idea to find out why people stopped taking it in case the oil can be used in a scientific study. It might cut down on the drop out rate.

  • IT'S GREAT FOR CONSTIPATION TOO!

  • Has anybody had their blood lipids looked at during the time you tried the coconut oil trial?

  • Mine

    Note: Lipid may be high but if the size of the lipid is large, this is good.

    Have the lab give some indication to size.

    heart.org/HEARTORG/Conditio...

    Risk Calculator Tool

    heart.org/gglRisk/main_en_U...

    March 18, 2014

    Blood Pressure: 130/70 (systolic/diastolic)

    LDL ~ 158

    HDL ~ 67

    Ketones ~ neg

    Triglycerides ~ 75

    Cholesterol ~ 240

    BMI (body mass index) ~ 25.81 kg/m2

    A person with a BMI of 18.5 to 24.9 is considered to be at a healthy weight. A person with a BMI of 25-29.9 is considered to be overweight. A BMI over 30 is considered obese. A BMI of 40 or above indicates that a person is morbidly obese. This can increases a person's risk of death from any cause by 50% to 150%.

  • As indicated in my previous post, after 1 year using Fuel for Thought (6 tbs of Co) my cholesterol went from 160 to 170. Other indicators were the same after 1 year.

  • “LDL (bad) cholesterol will elevate slightly but clump size will be increased which is a net positive because larger LDL is less likely to stick to artery walls.”

  • It will be interesting to see if anybody else is monitoring this LDL:HDL ratio and if anybody in the UK has been able to persuade their GP to ask for this investigation. Most GPs do the gross cholesterol measurements but little else.

  • If the issue is reducing CVD (CardioVascular Disease ) mortality, then basing treatment on TC (total cholesterol) is a dangerous practice, according to a recent study on a very large population (12,740 adults, age 40-69) over 15 years. This study* showed a U-shaped mortality risk, with relative risk levels of

    TC_________ <160___ 160-199___ 200-239 ___ >240

    CVD Risk ___1.92 ___ 1.00 ______ 1.23 ______ 1.85

    Comparing these results with the recent suggestion that all adults be treated with statin drugs to push TC below 150, indicates a major departure of the clinical guidance from the facts. There is evidence** that the HDL/LDL ratio is inversely correlated with CVD mortality risk.

    HDL/LDL ______ <.23___ .23-.33 ___ .33-.4 ___ >.4

    CVD Risk ______ 3.40______ 1.00 ______ .40 ______ 1.00

    For most people, CO increases HDL and has little effect on LDL. Thus it increases TC and lowers the HDL/LDL ratio. Clinicians who have not kept up with current research may misinterpret this outcome.

    References.

    * ncbi.nlm.nih.gov/pmc/articl...

    Low Cholesterol is Associated with Mortality from Cardiovascular Diseases: A Dynamic Cohort Study in Korean Adults

    "12,740 adults aged 40 to 69 yr who underwent a mass screening examination were followed up from 1993 to 2008. Occurring CVD deaths were confirmed by the death certificates in the National Statistical Office, Korea. Groups with the lowest group having TC < 160 mg/dL as well as the highest group having >= 240 mg/dL were associated with higher CVD mortality"

    **http://www.ncbi.nlm.nih.gov/pubmed/2293751

    High density lipoprotein cholesterol as a predictor of cardiovascular disease mortality in men and women: the follow-up study of the Lipid Research Clinics Prevalence Study.

    "HDL cholesterol is more closely related to cardiovascular disease than is LDL cholesterol. HDL cholesterol is inversely related to both coronary heart disease and other cardiovascular disease mortality in both sexes"

  • Thank you for this response. I am aware of the need for the correct investigations but when one is faced by GPs who just look at norm curve and state that, "it's not too high for your age," it is often difficult to get them to take such things into account.

    Does anybody know where one can buy a private blood test in the UK to determine such a measurement of LDL and HDL levels?

  • I took 5 tea spoons a day for 5 weeks the oil or solid [in hot drink] had no taste and noticed no difference good or bad , still use a little on grilled fish or in my hot drink .

  • Thanks Ned-Kelly, it looks as though the jury is still out in purely adding coconut oil to diet. Some people can't stand the taste, some people don't notice a change and some people seems to get a lot of help from it. That's Parkinson's for you I suppose.

    As well as the genetic make up of individuals which makes us all different we have different diets, lifestyles and Parkinson's symptoms. Nobody should feel as though they are missing a trick if a supplement or dietary change doesn't work, but I would recommend that your other parameters are monitored during the exploration. I am thinking of blood cholesterol types with coconut oil, but vitamin levels if you are taking large dose supplements etc.

  • I am still taking coconut oil but reduced to four tblsp per day, more or less. I take no medication. I stopped the modified keto diet. I continue to observe my symptoms for any improvement. When I first started taking coconut oil it seemed to me the fine motor skill of brushing my teeth was slightly improved. Now yesterday, the evening meal I included one tablet, 200mg Ibuprofen. It seemed to me there was a marked improvement to my fine motor skills. Earlier last year I took one Ibuprofen tablet on regular basis then stopped. I will now add Ibuprofen back into my diet and continue my observations.

  • Thanks RoyProp. Did you get any blood work done to monitor your different cholesterol levels? Did you stop taking Pd active medications or had you not started them yet?

  • After my diagnosis the neurologist gave me Neupro Patches. I tried them for three days. During this time I studied articles regarding medications and also read about the experience of others. I chose to not take medication until it was absolutely necessary. I am giving Ultrasound Surgery consideration and waiting for the procedure to complete testing and receive approval as a treatment.

    March 18, 2014

    Blood Pressure: 130/70 (systolic/diastolic)

    LDL ~ 158

    HDL ~ 67

    Ketones ~ neg

    Triglycerides ~ 75

    Cholesterol ~ 240

    BMI (body mass index) ~ 25.81 kg/m2

    A person with a BMI of 18.5 to 24.9 is considered to be at a healthy weight. A person with a BMI of 25-29.9 is considered to be overweight. A BMI over 30 is considered obese. A BMI of 40 or above indicates that a person is morbidly obese. This can increases a person's risk of death from any cause by 50% to 150%.

  • Thank you RoyProp. I must get up to speed on the USA units for cholesterol.

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