Chronic pancreatitis

[Radio2000]

Hi new to this group. I stopped drinking 16 years ago then in March 2021 took I'll and diagnosed with gallbladder stone pancreatitis. Had gallbladder removed in August and now I am left in limbo had ct scan October now don't know whether got chronic pancreatitis or not waiting to go back to consultant. Doc says could have IBS due to the operation not confirmed sick of being doubled up in pain after eating some days he has now given me Mebeverin tablets to take aswell. Already taking anti sickness and nausea tablets this getting me down just sick of being in pain

[Sofia_MC Partner]

Hi Radio2000, I'm sorry you have to deal with this terrible disease.

You mentioned a CT scan in October, did you provider explain your results? Lesions in your pancreas could be an indication of CP. An endoscopic ultrasound or an ERCP would allow your doctor to examine your GI tract, so that is another option if your doctor deems it necessary. I will link a diagnosis toolkit for pancreatitis below for more information.

As for pain management, folks on this community have suggested a number of things that might be helpful besides pain medication. Heating pads, eating a low-fat diet, avoiding eating highly processed or overly fatty foods, eating small meals, and warm baths.

Keep us updated and let me know if there is any other information I can send your way for now.

Diagnosis toolkit: mission-cure.org/patient-re...

[Radio2000 in reply to Sofia_MC]

HiConsultant said there was nothing un towards so had to see my own doctor they said would speed up next appointment yo see him. Pain there 24/7 sometimes get a attack after eating doctor give me tablets for IBS really waiting to see what consultant says or does just left in limbo with constipation laxatives help a bit nausea pain feeling lightheaded and sometimes feel get sickly feeling and out bout of feet swelling

[morphalot in reply to Radio2000]

Hi @Radio2000Sorry to hear you have chronic pain. I've had chronic pancreatitis since 1984, when I had my gall bladder removed, followed by paralytic ileus and a wound abscess. I was referred to an excellent consultant at Manchester Royal Infirmary. She ran a lot of tests (she took me into hospital for a week of tests, and she'd already done some). I was told that I would have chronic pancreatitis for life, and would also have to take medicine for life (a small price to pay if it helps the pain and diarrhoea - which it does). She put me on cholestyramine tablets and selenium ACE. At first I was also given vials of pethidine with which I could inject myself if the pain became too much to bear. However, as time and practices have moved on I find I can manage without the pethidine using mindfulness, and I only take the tablets when the pain is exacerbated by something - usually alcohol or fats. A lot of sugar in my diet doesn't help either, not do large meals, so I make appropriate adjustments. I'm not saying that the same things would help you, as we're all different and I had some other complications, but it could be worth a try. Oh, and not to put to fine a point on it, bleach is very helpful in unsticking the poo that's sticks to the toilet bottom!! I realise that may be TMI but it's something that happens with CP so is worth a mention!! Speak to your GP about the tablets, and try to get on a pain management course. I was fobbed off with IBS at first into I told my first consultant just how many times I was going to the toilet and how it was ruining my life - then he referred me to Manchester.

[Radio2000 in reply to morphalot]

Thanks for info at moment I am fighting to see consultant thinking about going private to get some more information and trying to get EUS done not getting a lot of help